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DEBRA News: Healthcare

Through the keyhole view of an EB clinic

14 January 2016

Find out what goes on at a multi-disciplinary EB clinic through the eyes of Mike Bartlett, DEBRA's Director of Fundraising and Communications.

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Clinical practice guideline on the management of cancer in EB published

17 November 2015

Valuable clinical practice guideline on the management of skin cancer in people with severe EB published.

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A European Reference Network for genetic skin conditions: the way forward

2 July 2015

DEBRA International is working with a number of organisations to create a European Reference Network for genetic skin conditions.

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Russian medics visit Birmingham Children’s Hospital

9 March 2015

A team of Russian medics made a special visit to Birmingham Children’s Hospital last week to meet young patients and hear from world-leading rare skin disease experts at the hospital.

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New patient charter for rare diseases

27 October 2014

We’re supporting the Genetic Alliance UK patient charter “Patient perspectives and priorities on NHS England’s  commissioning of medicines for rare diseases”.

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