30 January 2017
DEBRA is making a significant contribution to the new Rare Disease Centre at St Thomas’ Hospital, London which, for the first time, will bring together all the services, healthcare professionals and facilities necessary to meet the complex medical requirements of people living with EB.
31 October 2016
EB: My Story is designed to offer children and young people unbiased material about what living with the condition is really like. The book, jointly sponsored by DEBRA UK, DEBRA Ireland and BCH Charity, is now available to download.
17 November 2015
Valuable clinical practice guideline on the management of skin cancer in people with severe EB published.