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DEBRA News: Healthcare

Bone Health and Mobility in Epidermolysis Bullosa

25 May 2017

Book now for the a Bone Health and Mobility in Epidermolysis Bullosa (EB) study day for healthcare professionals.

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Advanced Epidermolysis Bullosa Study Days 2 - 3 November 2017

17 May 2017

Book now for this unique and informative two day study programme about Epidermolysis Bullosa for carers and healthcare professionals.

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Rare Disease Centre will improve patient care

16 February 2017

Find out what the New Rare Disease Centre at St Thomas' Hospital will mean for DEBRA member Christo Kapourani.

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New rare disease centre to transform patient care

30 January 2017

DEBRA is making a significant contribution to the new Rare Disease Centre at St Thomas’ Hospital, London which, for the first time, will bring together all the services, healthcare professionals and facilities necessary to meet the complex medical requirements of people living with EB.

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EB: My Story book now available online

31 October 2016

EB: My Story is designed to offer children and young people unbiased material about what living with the condition is really like. The book, jointly sponsored by DEBRA UK, DEBRA Ireland and BCH Charity, is now available to download.

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