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DEBRA News: Community Support

DEBRA CEO Ben Merrett takes on 440 Miles in 4 days!

8 June 2018

Ben will be taking on a challenging ride in memory of James Dunn, who passed away in April.

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Royal Patron puts the focus on EB in Hello! Magazine

20 March 2018

Aspiring photographer James Dunn, who has EB, was invited to Buckingham Palace to meet our Royal Patron, Her Royal Highness, The Countess of Wessex GCVO, and take her portrait. 

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Unique Rare Diseases Centre accepts first EB patient

6 November 2017

Earlier this month the new Rare Diseases Centre at St Thomas’ Hospital, London, accepted its first patient suffering from Epidermolysis Bullosa (EB)

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Tell us what you thought of our latest EB Get Together in Birmingham!

25 September 2017

Thank you so much to all those who attended our EB Members’ Get Together on Saturday at the National Motorcycle Museum.  It was great to see so many people chatting, sharing ideas, experiences, and making new friends.

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Centre Algarve offer DEBRA Members a free stay!

14 September 2017

Centre Algarve in Portgual have very kindly offered a limited number of free places to DEBRA members on a bed and breakfast basis. This offer is for members severely affected by EB who require accessibility and additional specialist support, and can be accompanied by their families or carer.

 

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