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DEBRA News: Community Support

DEBRA Members Join Our President To Raise Awareness of EB

5 June 2019

DEBRA’s president Falklands veteran, Simon Weston CBE, is touring the UK with a live stage show about his life and experiences. DEBRA Members Veronica and Michael Pearson and their family joined him as VIP guests for the first performance.

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Interim Appointments to Our Trustee Board

10 May 2019

Jim Irvine has been appointed as Interim Chair of Trustees and Jo Merchant as Acting Treasurer.

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Award-Winning Chefs Come Together to #FightEB

17 April 2019

On 14 June 2019, four award-winning chefs, including Michelin-starred chef Jason Atherton, will come together to support DEBRA and fight EB at the Butterfly Ball at the Royal Garden Hotel in Kensington.

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Young EB sufferers highlight need for organ donors

5 March 2019

13 year old Grace Fincham, who has a rare form of EB which causes weakness to her heart, recently received a lifesaving heart transplant. But her brother Freddie, who has the same type of EB, needs one too

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Free tickets for DEBRA Members to Circus Starr's new winter show

18 December 2018

Circus Starr is delighted to be able to offer to DEBRA members free tickets to their new winter show!

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