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DEBRA News: Community Support

DEBRA Board Update from Jim Irvine, Chair of Trustees

2 July 2020

After 12 excellent years of service to DEBRA and the EB community, our CEO Ben Merrett has advised the Board of Trustees that he has decided to resign in order to take some time out for personal reasons before looking for a new challenge

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Home-schooling and EB

13 May 2020

Many families around the country are currently faced with the task of managing home-schooling, but what does this look like for an EB family? DEBRA Member and Trustee Carly has shared her experience of the ‘new normal’ and some tips for getting through the home-school day. 

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DEBRA Ambassador Lucy Beall-Lott shares her story with The Brothers Trust

1 April 2020

DEBRA UK has many fantastic and inspirational ambassadors, including the amazing Lucy Beall-Lott, who recently took some time to talk to Dom and Harry from The Brothers Trust about life with EB.

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DEBRA Holiday Homes close due to Coronavirus (COVID-19)

23 March 2020

To enable the wellbeing of EB members and the wider community, we have decided to close all DEBRA holiday homes until further notice. This is in line with the latest government guidance which is focused on as many people as possible staying home and reducing all non-essential travel.

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DEBRA UK Guest blog: Fighting the growth of skin cancer cells

12 March 2020

Professor Gareth Inman at the Cancer Research UK Beatson Institute and the Institute of Cancer Sciences, University of Glasgow, tells us how his research is fighting the growth of skin cancer cells.

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