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DEBRA News: Community Support

Unique Rare Diseases Centre accepts first EB patient

6 November 2017

Earlier this month the new Rare Diseases Centre at St Thomas’ Hospital, London, accepted its first patient suffering from Epidermolysis Bullosa (EB)

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Tell us what you thought of our latest EB Get Together in Birmingham!

25 September 2017

Thank you so much to all those who attended our EB Members’ Get Together on Saturday at the National Motorcycle Museum.  It was great to see so many people chatting, sharing ideas, experiences, and making new friends.

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Centre Algarve offer DEBRA Members a free stay!

14 September 2017

Centre Algarve in Portgual have very kindly offered a limited number of free places to DEBRA members on a bed and breakfast basis. This offer is for members severely affected by EB who require accessibility and additional specialist support, and can be accompanied by their families or carer.

 

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Remembering Professor Robin Eady (1940 - 2017)

22 August 2017

Professor Robin Eady, Emeritus Professor at St John’s Institute of Dermatology at King’s College London and former Honorary Consultant Dermatologist at Guy’s and St Thomas’ NHS Foundation Trust, has died aged 77.

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DEBRA Members Weekend Away for Adults, 6 - 8th October in Birmingham

2 August 2017

We are thrilled to be relaunching a weekend away this autumn for adults (18+) living with EB on the 6 - 8th October 2017 in Birmingham!

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