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DEBRA News: Community Support

DEBRA Member Daisy Pearson shortlisted for Young Fundraiser of the Year Award!

28 June 2018

DEBRA Member Daisy Pearson (12) from Holt in North Norfolk has been shortlisted for the Young Fundraiser of the Year Award by the National Institute of Fundraising.

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DEBRA Weekend Away for Adults - Hertfordshire 5-7th October 2018

27 June 2018

We are excited to be planning a weekend away this autumn for adults (18+) living with EB!

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DEBRA CEO Ben Merrett takes on 440 Miles in 4 days!

8 June 2018

Ben will be taking on a challenging ride in memory of James Dunn, who passed away in April.

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Royal Patron puts the focus on EB in Hello! Magazine

20 March 2018

Aspiring photographer James Dunn, who has EB, was invited to Buckingham Palace to meet our Royal Patron, Her Royal Highness, The Countess of Wessex GCVO, and take her portrait. 

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Unique Rare Diseases Centre accepts first EB patient

6 November 2017

Earlier this month the new Rare Diseases Centre at St Thomas’ Hospital, London, accepted its first patient suffering from Epidermolysis Bullosa (EB)

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