You are here: News > Community Support

DEBRA News: Community Support

Join us at our Family EB Get Together on 18 November!

25 September 2017

You are invited to a free get together for families living with EB on Saturday 18 November in Solihulll.

More details

Centre Algarve offer DEBRA Members a free stay!

14 September 2017

Centre Algarve in Portgual have very kindly offered a limited number of free places to DEBRA members on a bed and breakfast basis. This offer is for members severely affected by EB who require accessibility and additional specialist support, and can be accompanied by their families or carer.


More details

Remembering Professor Robin Eady (1940 - 2017)

22 August 2017

Professor Robin Eady, Emeritus Professor at St John’s Institute of Dermatology at King’s College London and former Honorary Consultant Dermatologist at Guy’s and St Thomas’ NHS Foundation Trust, has died aged 77.

More details

DEBRA Members Weekend Away for Adults, 6 - 8th October in Birmingham

2 August 2017

We are thrilled to be relaunching a weekend away this autumn for adults (18+) living with EB on the 6 - 8th October 2017 in Birmingham!

More details

Announcement: EB Simplex Meeting, Exeter Cancellation

28 June 2017

We are sorry to announce that DEBRA has decided to cancel the EB Simplex meeting, which was due to take place on Saturday 8 July at the Sandy Park Conference Centre, Exeter.

More details

Make a difference

Make a difference


Could pay for one hour of research to bring us closer to finding effective treatments for EB.

Donate Today