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DEBRA News: Community Support

Award-Winning Chefs Come Together to #FightEB

17 April 2019

On 14 June 2019, four award-winning chefs, including Michelin-starred chef Jason Atherton, will come together to support DEBRA and fight EB at the Butterfly Ball at the Royal Garden Hotel in Kensington.

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Young EB sufferers highlight need for organ donors

5 March 2019

13 year old Grace Fincham, who has a rare form of EB which causes weakness to her heart, recently received a lifesaving heart transplant. But her brother Freddie, who has the same type of EB, needs one too

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Free tickets for DEBRA Members to Circus Starr's new winter show

18 December 2018

Circus Starr is delighted to be able to offer to DEBRA members free tickets to their new winter show!

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Adults with EB enjoy a magical weekend away with DEBRA

11 October 2018

The DEBRA weekend away, which took place earlier this month, gave adults with EB the opportunity to enjoy a break away from home at Harry Potter World in Watford.

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An exciting opportunity to attend a family activity camp in Ireland on 24th to 25th November!

25 September 2018

DEBRA Ireland have organised an activity camp in partnership with Barretstown an organisation that specialises in fun activity camps with medical back up. DEBRA Ireland have kindly invited DEBRA UK to join in with a limited amount of places to their overnight stay and activities!

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Could pay for one hour of research to bring us closer to finding effective treatments for EB.

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