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DEBRA News: Research

The Centre for Appearance Research is looking for research participants

28 May 2015

Nick Sharratt is conducting a research study into exploring experiences of visible difference, intimacy and intimate relationships.

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Infusions of donor bone marrow cells help children with inherited EB

27 May 2015

Promising results from a trial of a new stem cell based therapy for Recessive Dystrophic Epidermolysis Bullosa (RDEB) have been published in the Journal of Investigative Dermatology.

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The Care-for-Rare Research Award 2015

28 April 2015

The Care-for-Rare Foundation launches the Care-for-Rare Science Award.

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Scioderm’s therapy, Zorblisa, to commence phase 3 trial

24 March 2015

Scioderm announces the registration of patients for the phase 3 trial of  Zorblisa - its experimental treatment for EB.

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Rare Disease Day at Royal Holloway 2015

19 March 2015

This year’s theme for Rare Disease Day 2015 was ‘Living with a Rare disease – day by day – hand in hand!’

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