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DEBRA News: Research

Amryt Pharma EASE Phase III Clinical Trial to study the efficacy and safety of Oleogel-S10 in Epidermolysis Bullosa

11 January 2018

The EASE clinical study will be performed in several countries including the UK. Two key UK sites include Great Ormond Street Hospital in London and Birmingham Children’s Hospital NHS Trust. In total about 164 participants are expected to participate.

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What’s different about the Rare Diseases Centre at St. Thomas’ Hospital?

5 January 2018

The new centre, which DEBRA part-funded, enables the specialist EB clinical team there to provide the best possible care in an environment specially designed with the needs of the EB Community in mind.

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EB researchers break new ground with skin graft trial

9 November 2017

An international team of researchers has broken new ground with a pioneering skin grafting procedure, reconstructing a fully functional outer skin – or epidermis – for a child suffering from a severe, and often fatal, form of EB.

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Developing Treatments for Epidermolysis Bullosa Simplex

6 October 2017

Gene therapy may be a promising treatment in the future for Epidermolysis Bullosa Simplex (EBS), where stem cells could be cultured outside of the body, modified and returned as transplants.

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Drug repurposing – are we making progress in EB?

16 August 2017

Recently DEBRA UK funded a project with Professor Jouni Uitto at the Thomas Jefferson University in Philadelphia, USA to look at novel approaches for “read through of nonsense mutations” in COL7A1.

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