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DEBRA News: Research

Clinical trial could improve quality of life for people with EB

20 June 2017

The first person has been enrolled in a phase 2/3 clinical trial of an ointment which could reduce the symptoms of Epidermolysis Bullosa Simplex (EBS), dramatically improving quality of life for people with the condition.

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Amicus Therapeutics Completes Enrollment in Essence Phase 3 EB Clinical Study

3 April 2017

Amicus Therapeutics has completed enrollment in the ongoing Phase 3 clinical study (ESSENCE) of the novel topical medicine SD-101 for people with EB.

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Call for research proposals: 'Wound Healing in EB'

24 January 2017

DEBRA International is now inviting expressions-of-interest for funding support targeting wound healing in EB.

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DEBRA initiative stimulates innovation

21 December 2016

DEBRA Austria and DEBRA UK jointly organised a 'Wound Healing in EB' meeting,  bringing together specialists in EB clinician-researchers and leading experts in other areas of wound healing.

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ESSENCE Study being made available to EB patients in the UK

29 November 2016

The ESSENCE Study is being made available to English-speaking EB patients at a site in Freiberg, Germany.

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