DEBRA News: Research
Clinical trial could improve quality of life for people with EB
20 June 2017
The first person has been enrolled in a phase 2/3 clinical trial of an ointment which could reduce the symptoms of Epidermolysis Bullosa Simplex (EBS), dramatically improving quality of life for people with the condition.
Amicus Therapeutics Completes Enrollment in Essence Phase 3 EB Clinical Study
3 April 2017
Amicus Therapeutics has completed enrollment in the ongoing Phase 3 clinical study (ESSENCE) of the novel topical medicine SD-101 for people with EB.
Call for research proposals: 'Wound Healing in EB'
24 January 2017
DEBRA International is now inviting expressions-of-interest for funding support targeting wound healing in EB.
DEBRA initiative stimulates innovation
21 December 2016
DEBRA Austria and DEBRA UK jointly organised a 'Wound Healing in EB' meeting, bringing together specialists in EB clinician-researchers and leading experts in other areas of wound healing.
ESSENCE Study being made available to EB patients in the UK
29 November 2016
The ESSENCE Study is being made available to English-speaking EB patients at a site in Freiberg, Germany.
Make a difference
£25.00
A MONTH
Could pay for one hour of research to bring us closer to finding effective treatments for EB.