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DEBRA News: General

YouTube feature raises awareness of EB

10 May 2018

A new mini documentary featuring a 24-year-old college student with EB has already been viewed by thousands of people around the world. Watch it here and share to raise EB awareness.

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#FightEB frontman, James Dunn, has sadly passed away

7 April 2018

We are very sad to announce that #FightEB frontman and DEBRA UK Member, James Dunn, passed away on Saturday, 7 April.

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Purple pics #FightEB on Rare Disease Day!

2 March 2018

This Rare Disease Day we asked everyone to raise awareness of EB and by wearing something purple and putting a pound in the pot. Check out our favourite pics from the day.

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Taking Portraits with our Royal Patron to #FightEB

20 February 2018

Did you see DEBRA Member James Dunn on ITV’s Good Morning Britain this morning?

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'Boys With No Skin' Documentary Raises EB Awareness

30 January 2018

Did you see the EB documentary, 'The Boys With No Skin', on Channel Five? Watch it here and learn more about  support available and the research discussed in the programme.

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