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DEBRA News: General

#ShowYourRare and #FightEB for Rare Disease Day

13 February 2019

Raise awareness of EB and show your support for the EB Community throughout February by posting a selfie on Twitter, Instagram and Facebook with the hashtags #FightEB and #ShowYourRare.

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President of DEBRA International and DEBRA UK’s Chair of Trustees, Mike Jaega, has sadly passed away

7 February 2019

It is with great sadness that we announce that Mike Jaega, President of DEBRA International and DEBRA UK’s Chair of Trustees, passed away yesterday, Wednesday, 6 February.

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Celebrating 2018's Fundraising Heroes: Community Support Manager Rowena Hamilton

31 December 2018

Community Support Manager Rowena Hamilton was inspired to trek the Sahara to fight EB – read her story

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Falklands Veteran Simon Weston CBE Fights EB as DEBRA’s President

29 November 2018

As we celebrate our 40th anniversary, we are delighted to announce that Falklands War veteran Simon Weston CBE will be our new President.

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Celebrating 40 years of fighting EB

12 November 2018

We’re celebrating our 40th anniversary – 40 years of helping people suffering from EB and funding research into effective treatments and a cure for the condition.

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