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DEBRA News: General

Purple pics #FightEB on Rare Disease Day!

2 March 2018

This Rare Disease Day we asked everyone to raise awareness of EB and by wearing something purple and putting a pound in the pot. Check out our favourite pics from the day.

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Taking Portraits with our Royal Patron to #FightEB

20 February 2018

Did you see DEBRA Member James Dunn on ITV’s Good Morning Britain this morning?

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'Boys With No Skin' Documentary Raises EB Awareness

30 January 2018

Did you see the EB documentary, 'The Boys With No Skin', on Channel Five? Watch it here and learn more about  support available and the research discussed in the programme.

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James and Jemma #FightEB on TV

3 January 2018

Watch DEBRA member James Dunn and Consultant Dermatologist Prof. Jemma Mellerio highlighting the difference the new Rare Diseases Centre at St Thomas’ Hospital, London, is making to people suffering from EB on BBC Breakfast.

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DEBRA members are invited to Circus Starr's new winter show “Circus Goes to Hollywood”

5 December 2017

Circus Starr is delighted to be able to offer to DEBRA members free tickets to their new winter show “Circus Goes to Hollywood

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