You are here: News

DEBRA News

Volunteer holiday home helpers

21 March 2017

Could you give our DEBRA holiday homes the once over during the busy letting season, so that families living with EB can enjoy their well-deserved break?

More details

My Life in His Paws now available in paperback!

21 March 2017

Author Wendy Hilling talks about her life with EB and why she decided to write the book, My Life in His Paws, which is now out in paperback.

More details

DEBRA supporter wins Small Business Big Heart national award

15 March 2017

Long-term DEBRA supporter, David Hawes-Gatt, wins Big Heart National Award for his other charitable work and donates £1,000 prize to DEBRA.

More details

Worried about changes to Personal Independence Payments?

1 March 2017

The implementation of PIP assessments has been controversial and our experience has been that the EB community do need support to get what they need. Find out how to get it.

More details

Rare Disease Centre will improve patient care

16 February 2017

Find out what the New Rare Disease Centre at St Thomas' Hospital will mean for DEBRA member Christo Kapourani.

More details

Make a difference

Make a difference

£25.00 
A MONTH

Could pay for one hour of research to bring us closer to finding effective treatments for EB.

Donate Today