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DEBRA News

Developing Treatments for Epidermolysis Bullosa Simplex

6 October 2017

Gene therapy may be a promising treatment in the future for Epidermolysis Bullosa Simplex (EBS), where stem cells could be cultured outside of the body, modified and returned as transplants.

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Join us at our Family EB Get Together on 18 November!

25 September 2017

You are invited to a free get together for families living with EB on Saturday 18 November in Solihulll.

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Centre Algarve offer DEBRA Members a free stay!

14 September 2017

Centre Algarve in Portgual have very kindly offered a limited number of free places to DEBRA members on a bed and breakfast basis. This offer is for members severely affected by EB who require accessibility and additional specialist support, and can be accompanied by their families or carer.

 

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Remembering Professor Robin Eady (1940 - 2017)

22 August 2017

Professor Robin Eady, Emeritus Professor at St John’s Institute of Dermatology at King’s College London and former Honorary Consultant Dermatologist at Guy’s and St Thomas’ NHS Foundation Trust, has died aged 77.

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Drug repurposing – are we making progress in EB?

16 August 2017

Recently DEBRA UK funded a project with Professor Jouni Uitto at the Thomas Jefferson University in Philadelphia, USA to look at novel approaches for “read through of nonsense mutations” in COL7A1.

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