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DEBRA News

Rare Disease Day 2021

28 February 2021

It’s #RareDiseaseDay2021 and we need your help to raise awareness of the painful genetic skin condition, Epidermolysis Bullosa (EB), because everyone matters.

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DEBRA appoints new Director of Research

22 January 2021

Dr Hussain joins DEBRA on 25th January to lead the charity’s research strategy, funding pioneering research to help alleviate the symptoms but ultimately find a cure.

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Clinisupplies update - home pharmacy delivery service

19 January 2021

An update from CliniSupplies about their home pharmacy delivery service. 

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In memory of DEBRA Golf Society President, Peter Alliss

10 December 2020

All at DEBRA were sad to hear of the passing of the ‘voice of golf’ Peter Alliss, President of DEBRA Golf Society for over 25 years. Our thoughts are with his family at this time. 

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CEO Appointment confirmed by DEBRA Trustees 

1 December 2020

The Board of Trustees are delighted to announce that  Tony  Byrne has been offered and accepted  the CEO role on a permanent basis. 

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