DEBRA News
Rare Disease Day 2021
28 February 2021
It’s #RareDiseaseDay2021 and we need your help to raise awareness of the painful genetic skin condition, Epidermolysis Bullosa (EB), because everyone matters.
DEBRA appoints new Director of Research
22 January 2021
Dr Hussain joins DEBRA on 25th January to lead the charity’s research strategy, funding pioneering research to help alleviate the symptoms but ultimately find a cure.
Clinisupplies update - home pharmacy delivery service
19 January 2021
An update from CliniSupplies about their home pharmacy delivery service.
In memory of DEBRA Golf Society President, Peter Alliss
10 December 2020
All at DEBRA were sad to hear of the passing of the ‘voice of golf’ Peter Alliss, President of DEBRA Golf Society for over 25 years. Our thoughts are with his family at this time.
CEO Appointment confirmed by DEBRA Trustees
1 December 2020
The Board of Trustees are delighted to announce that Tony Byrne has been offered and accepted the CEO role on a permanent basis.
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