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Purple pics #FightEB on Rare Disease Day!

2 March 2018

This Rare Disease Day we asked everyone to raise awareness of EB and by wearing something purple and putting a pound in the pot. Check out our favourite pics from the day.

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Taking Portraits with our Royal Patron to #FightEB

20 February 2018

Did you see DEBRA Member James Dunn on ITV’s Good Morning Britain this morning?

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Generous Guests and Great Chefs #FightEB

9 February 2018

Earlier this week guests came together to support the #FightEB campaign at the DEBRA Great Chefs Dinner, a unique dining experience at one of the most luxurious hotels in the capital, The Langham, London, raising over £85,000!

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'Boys With No Skin' Documentary Raises EB Awareness

30 January 2018

Did you see the EB documentary, 'The Boys With No Skin', on Channel Five? Watch it here and learn more about  support available and the research discussed in the programme.

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What you need to know about the next skin graft trials

19 January 2018

We can confirm that researcher Michele De Luca and his team, who successfully reconstructed a fully functional outer skin – or epidermis – for a child suffering from Junctional EB have received funding to carry out further trials of the technique. 

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