DEBRA News
Clinisupplies update - home pharmacy delivery service
19 January 2021
An update from CliniSupplies about their home pharmacy delivery service.
In memory of DEBRA Golf Society President, Peter Alliss
10 December 2020
All at DEBRA were sad to hear of the passing of the ‘voice of golf’ Peter Alliss, President of DEBRA Golf Society for over 25 years. Our thoughts are with his family at this time.
CEO Appointment confirmed by DEBRA Trustees
1 December 2020
The Board of Trustees are delighted to announce that Tony Byrne has been offered and accepted the CEO role on a permanent basis.
EB Awareness Week: EB is family affair for 82 year old Terry Cook who has EB Simplex
31 October 2020
EB is family affair for 82 year old Terry Cook who has EB Simplex. Growing up in the 1920s with no NHS was difficult for Terry and his family to get a correct diagnosis with very little awareness of EB.
EB Awareness Week: Living with Dystrophic EB is an unimaginable roller coaster for 56 year old Leslie Paine
30 October 2020
Les shares his 'EB to me' story about growing up in the 1960s with EB.
Make a difference
Please help us fund vital healthcare such as specialist EB nurses as well as research, care and life-changing support.