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DEBRA News

Clinisupplies update - home pharmacy delivery service

19 January 2021

An update from CliniSupplies about their home pharmacy delivery service. 

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In memory of DEBRA Golf Society President, Peter Alliss

10 December 2020

All at DEBRA were sad to hear of the passing of the ‘voice of golf’ Peter Alliss, President of DEBRA Golf Society for over 25 years. Our thoughts are with his family at this time. 

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CEO Appointment confirmed by DEBRA Trustees 

1 December 2020

The Board of Trustees are delighted to announce that  Tony  Byrne has been offered and accepted  the CEO role on a permanent basis. 

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EB Awareness Week: EB is family affair for 82 year old Terry Cook who has EB Simplex

31 October 2020

EB is family affair for 82 year old Terry Cook who has EB Simplex. Growing up in the 1920s with no NHS was difficult for Terry and his family to get a correct diagnosis with very little awareness of EB.

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EB Awareness Week: Living with Dystrophic EB is an unimaginable roller coaster for 56 year old Leslie Paine

30 October 2020

Les shares his 'EB to me' story about growing up in the 1960s with EB. 

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