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DEBRA News

YouTube feature raises awareness of EB

10 May 2018

A new mini documentary featuring a 24-year-old college student with EB has already been viewed by thousands of people around the world. Watch it here and share to raise EB awareness.

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#FightEB frontman, James Dunn, has sadly passed away

7 April 2018

We are very sad to announce that #FightEB frontman and DEBRA UK Member, James Dunn, passed away on Saturday, 7 April.

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Share your experience at a Patient-Focussed Drug Development Meeting for EB

5 April 2018

DEBRA of America is excited to announce they'll be meeting directly with the US Food and Drug Administration (FDA) this Friday, 6 April. Watch live and participate in live polling.

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Royal Patron puts the focus on EB in Hello! Magazine

20 March 2018

Aspiring photographer James Dunn, who has EB, was invited to Buckingham Palace to meet our Royal Patron, Her Royal Highness, The Countess of Wessex GCVO, and take her portrait. 

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Purple pics #FightEB on Rare Disease Day!

2 March 2018

This Rare Disease Day we asked everyone to raise awareness of EB and by wearing something purple and putting a pound in the pot. Check out our favourite pics from the day.

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