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DEBRA News

DEBRA welcomes Interim CEO Tony Byrne

7 October 2020

Antony Byrne has been appointed as Interim CEO at DEBRA UK, the national charity supporting people suffering from Epidermolysis Bullosa (EB), a potentially fatal genetic skin condition that causes constant pain due to unstoppable internal and external blistering. Tony will begin his role on Monday 12th October.

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DEBRA Patron HRH The Countess of Wessex volunteers at Berkshire charity store

23 September 2020

DEBRA Patron HRH The Countess of Wessex has volunteered at the newly opened DEBRA store in Martins Heron, Bracknell, Berkshire to support the individuals and families living with the devasting skin condition Epidermolysis Bullosa (EB). 

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TV presenter Anthea Tuner opens news DEBRA store

22 September 2020

TV presenter Anthea Turner, The Worshipful the Mayor of the Borough of Bracknell Forest, Councillor Ash Merry and the Mayoress, Councillor Isabel Mattick opened a new DEBRA charity store yesterday in Martins Heron, Bracknell, Berkshire to raise vital funds to support individuals and families living with EB.

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DEBRA guest blog...Come on people, let's do this

21 September 2020

A beautifully written blog by Dom Holland, Founder of The Brothers Trust about Oliver Thomas and family's difficult journey with the painful skin blistering condition, EB.

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Amryt Pharma announces positive top line results from pivotal phase 3 “EASE” trial of wound healing gel in Epidermolysis Bullosa

11 September 2020

We are excited to share the positive results of a global trial by Amyrt Pharma of a topical therapeutic gel treatment which could potentially increase the speed of wound healing for people affected by Epidermolysis Bullosa (EB).

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