DEBRA News
Interim Appointments to Our Trustee Board
10 May 2019
Jim Irvine has been appointed as Interim Chair of Trustees and Jo Merchant as Acting Treasurer.
Award-Winning Chefs Come Together to #FightEB
17 April 2019
On 14 June 2019, four award-winning chefs, including Michelin-starred chef Jason Atherton, will come together to support DEBRA and fight EB at the Butterfly Ball at the Royal Garden Hotel in Kensington.
New Research Supports EB Cancer Trial
12 April 2019
New research suggests Rigosertib may be safe and effective in combating EB cancer. We’re funding a clinical trial to take it to the next stage.
Young EB sufferers highlight need for organ donors
5 March 2019
13 year old Grace Fincham, who has a rare form of EB which causes weakness to her heart, recently received a lifesaving heart transplant. But her brother Freddie, who has the same type of EB, needs one too
DEBRA Member Myra Ali Shakes Her Beauty to #FightEB
1 March 2019
DEBRA Member Myra Ali, who has EB, recently filmed the mini documentary "Shake My Beauty" with Barcroft TV. Watch it here.
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