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Local Connect events

Two women sit at a café table, smiling and talking over drinks during one of DEBRA's Local Connect events.

Connecting members in local communities across the UK, hosted by DEBRA’s EB Community Support Team.

Our EB Community Support Managers are out and about, meeting and connecting members in our brand-new Local Connects!

We’re excited to be gradually rolling out these events across the UK. These are free, informal, in-person events hosted by DEBRA’s EB Community Support Team, designed to bring people living with EB and their carers together.

Come along to share experiences, build connections, and talk about support available to you in a relaxed and welcoming environment.

 

Map of the UK highlighting cities and regions where DEBRA's Local Connect events will be held in 2025.

What you can expect

At these small events, you can join someone from our EB Community Support Team and other DEBRA members for tea, coffee, and conversation in a local community space — like a coffee shop or DEBRA retail store.

Local Connects typically last around two hours and are held on weekdays between 9am–5pm.

  • Meet others living with EB
  • Find peer support
  • Ask questions about living with EB, benefits, school/work support, and healthcare access
  • Learn about upcoming events and how to get involved

 

How can I sign up for an event?

If you’d like to attend any of the upcoming Local Connect events listed below, please email one of the EB Community Support Managers listed as the contact for that event to register your interest and find out more.

You can also check the map to see where all our Local Connects will be in 2025, and where we’ve been already.

“It was really relaxed yet informative, I really hope this sort of thing will be nationwide for others. One felt if one had any issues it was ok to ask without feeling awkward. Thank you to all those that made it happen. There was even laughter… being in the DEBRA shop it was made to feel just a group of people chatting, I am sure customers were not aware who we were, as we were in a lovely sunny corner… Thoughtful and caring event.”

DEBRA member

Upcoming Local Connects

 

New dates for 2026 will be added soon!

Please note these locations are subject to change if we do not receive enough interest from members in that area/town.

Where have we been so far?

We’ve already visited…

  • Belfast
  • Birmingham
  • Cardiff
  • Edinburgh
  • Exeter
  • Lancashire
  • London
  • Manchester
  • Middlesborough
  • Nottingham
  • Orpington
  • Southampton

our full calendar of upcoming member events

 

What if there’s nothing near me?

We want to hear from you! If you’d like to see a Local Connect event in your area, please email us at membership@debra.org.uk to express your interest and suggest a location.

Logo of DEBRA UK. The logo features blue butterfly icons and the organization's name. Underneath, the tagline reads "The Butterfly Skin Charity.
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