HRH The Countess of Wessex - "I feel that my life has been enriched by the experiences I have had since becoming Patron of DEBRA..." Read more
In the honorary role of DEBRA's President, Simon Weston CBE, will raise awareness of EB and DEBRA as well as supporting fundraising to provide care and support for the EB Community and fund research into effective treatments and a cure. Read more
"I am in a position to bring this charity to the attention of a number of people who will be able to make a real difference to the EB community." Read more
We are incredibly grateful to these famous faces for supporting us through our events, campaigns and DEBRA shops. Read more
Our Board of Trustees is made up from a majority of those who have a direct experience of EB, who either have EB themselves or have a close family member with EB, and those who have skills and experience that will add value to the governance and leadership of DEBRA. Read more
Our senior team works towards our mission of improving the quality of life for people living with EB and our search for a cure. Read more