You are here: Support for you > Membership and Benefits
Membership and Benefits

Membership and Benefits

We are committed to supporting people and families living in the UK who are affected by EB, whether or not they are members of DEBRA. However, becoming a member of DEBRA makes it easier to access our services.

*If you are already a member and need to change your address or contact information please fill out our change of details form.

You can become a DEBRA member if you:

  • have EB
  • are/were a relative, primary carer or partner of someone with EB

Or are working with EB:

  • as a healthcare professional
  • as a researcher specialising in EB
  • as a DEBRA volunteer, employee or trustee
  • or support a person with EB in an education setting or in the workplace

Membership is free and entitles you to a host of benefits including:

  • easy access to DEBRA literature
  • In Touch – our tri-annual newsletter featuring the latest news on healthcare, EB community support and research as well as features on people living with EB
  • access to our Annual Report
  • information on local and national fundraising events and other activities
  • invitations to local and regional meetings as well as the Annual Members' Event and AGM
  • Voting rights at the DEBRA AGM

If you have EB, or you are a close family member or carer of someone with EB, membership also entitles you to:

Fill in our membership form today and return it to: DEBRA House, 13 Wellington  Business Park, Dukes Ride, Crowthorne, Berkshire RG45 6LS.

If you have any queries, or would like a paper copy of the form, please call the DEBRA Head Office on 01344 771961.


DEBRA membership application form
DEBRA complies with the Data Protection Act (1998). Your details will be held on our membership database. You may inform us at any time if you do not wish to receive mailings from DEBRA. Your details will not be shared with any other company or organisation outside DEBRA. For more information please refer to our Privacy Policy.

Wendy's story

Wendy's story

“DEBRA has been brilliant helping us fund a hoist to help me turn over in bed and a washer/drier to cope with all the extra washing..." 


Lackshhya's story

Lackshhya's story

"My advice to anyone with EB is to get in touch with DEBRA because it’s good to meet other families who are coping with EB to talk and share thoughts and ideas.” Lackshhya’s Mum