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Get together for families living with EB Simplex - Exeter

Get together for families living with EB Simplex - Exeter

Where: Sandy Park Conference Centre, Sandy Park Way, Exeter, EX2 7NN

When: 8 July 2017


Information

Get an update on research into treatments for EB Simplex at this Get Together for people living with EB Simplex (EBS) and their families.

Hosted by DEBRA and run by Professor Irwin McLean and his team from the School of Life Sciences at the University of Dundee, topics covered at this free event include:

  • EB Simplex and the family of keratin disorders – a quite different class of EB
  • What are the causes of EB Simplex and what is the risk to future pregnancies?
  • EB Simplex Research – developing treatments for EB Simplex
  • New Research Discoveries Reported in the Press – Fact or Fiction?
  • Clinical Support for EB Simplex

Download a booking form

Plus

  • An open discussion with questions and answers
  • An opportunity to meet other members in the area
  • Refreshments and a sandwich lunch

Download the programme.

Pre-booking is essential   

Please fill out a booking form and return it by Friday 16 June 2017 to the Membership Team at DEBRA by email to membership@debra.org.uk or to:

DEBRA House
13 Wellington Business Park
Dukes Ride
Crowthorne
Berkshire
RG45 6LS

 Bookings will only be taken on receipt of a completed booking form. 

DOWNLOAD A BOOKING FORM

Read the full terms and conditions of booking.

Once your booking form has been received your booking will be confirmed in writing, by email or post.  If you do not receive confirmation please contact the Membership Team to ensure your booking is confirmed prior to attending.

Places are limited so please book now to avoid disappointment!

Who can attend?  

DEBRA members with EB and their families can attend. Children are welcome to attend but must be supervised by an adult at all times. Please note that activities for children are not provided but there will be tables with colouring pens and paper.

Is there a charge?   

No, this event is free to attend.

Car parking

Car parking is available at the conference centre.  Parking is free. However, to obtain your free parking without incurring a charge, on arrival go to the DEBRA registration desk in the Estuary Suite and provide your car details to a member of DEBRA staff.  Your details will then be registered on a computer provided by the venue. If you don't provide this information you are likely to incur a parking fine.

Assistance

If you have any questions or need assistance with booking please call 01344 771961 or email membership@debra.org.uk

We look forward to seeing you there!

Book now

Contact

Contact's name: Hazel Ewens
Email: membership@debra.org.uk
Phone: 01344 771961

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