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Butterfly Walk to #FightEB raises over £5,500!

Butterfly Walk to #FightEB raises over £5,500!

We're delighted to announce that the first Butterfly Walk to #FightEB raised over £5,500 which will make a great difference to the lives of those who are affected by EB.

On Saturday 6 July over 100 walkers, all members of the EB Community, descended on Greenham Common in Berkshire. It was incredible to see so many DEBRA Members, supporters and those from the local area come together to turn the Common into a sea of purple. There were nine individuals walking with EB and several large teams, including the wonderfully named 'The EB Jeebies'.

A huge thank you to all who came and made the event so special, as well as raising an amazing amount to #FightEB. To see the fantastic photos of the day please click here (link takes you to our Facebook page).

"Brilliant day, so very well organised - wasn’t expecting all the extra lovely touches, the cakes and drinks at the end, the butterfly wings, the butterfly hunt. Another positive for us was meeting more families and the walk gave us chance to have some very in depth conversations about EB and the emotional impact on us as parents, so the walk had added benefits! A very big thank you from us, it was great."
2019 Butterfly Walker

The Butterfly Walk to #FightEB will be returning in 2020! To be kept up to date, please hit the button below and complete your details. Date Saturday, 4 July 2020 at Greenham Common.

Register your interest for 2020