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Contact the EB nursing teams

Contact the EB nursing teams

In an emergency call 999. For urgent out of hours medical help contact NHS 111 or your GP.

If they require further information about your condition they should be advised to speak to the on call dermatology registrar at your specialist centre for EB.

Children’s Nursing Service – Great Ormond Street Hospital: 0207 829 7808

EB Clinical Nurse Specialists – Katie Plevey, Claire Vincent, Harriet Eagleton

Service Co-ordinator – Sonia Ama

Email: eb.nurses@gosh.nhs.uk 

Children’s Nursing Service – Birmingham Women and Children’s Hospital: 0121 333 8224

(Out of hours emergencies only: ask for the dermatologist on call stating that this is an EB child)

EB Clinical Nurse Specialists – Danielle Cunnington, Dawn James, Victoria Lynne, Jennifer Heaton, Hayley Ball.

Email: eb.team@nhs.net 

Adult Nursing Service – St. Thomas’ Hospital: 0207 188 0843

Main Contact: Service Co-ordinator – Frances Skehan (frances.skehan@nhs.net)

Lead EB Clinical Nurse Specialist – Jane Clapham (jane.clapham@gstt.nhs.uk)

EB Clinical Nurse Specialist – Chris Bloor (christopher.bloor@gstt.nhs.uk)

EB Clinical Nurse Specialist – Annette Downe (annette.downe@gstt.nhs.uk)

EB Clinical Nurse Specialist – Caroline MacKenzie (caroline.mackenzie@gstt.nhs.uk)

Adult Nursing Service – Solihull Hospital: 0121 4245232

EB Clinical Nurse Specialist – Tracy Adni

EB Clinical Nurse Specialist – Kal Begum

EB Clinical Nurse Specialist – Bryony Jay

EB Clinical Nurse Specialist – Carol Knowles

Email: ebteamsolihull@heartofengland.nhs.uk 

Scottish Healthcare Team: 0141 2118773

EB Clinical Nurse Specialist (adults) – Debbie Johnston (deborah.johnston@ggc.scot.nhs.uk)

EB Clinical Nurse Specialist (paediatrics) – Sharon Fisher (sfisher1@nhs.net)

Administrative Assistant – Tracy Scott (Mon – Wed, 9am – 3.30pm) (tracy.scott@ggc.scot.nhs.uk) 

 

Alisa's story

Alisa's story

DEBRA-funded specialist EB nurses provided a lifeline to Alisa’s parents in the early days, showing them how to change her dressings, lance the blisters...a harrowing daily experience dreaded by both Alisa and her mum.

READ HER STORY

 

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