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EB Centres of Excellence

EB Centres of Excellence

There are four EB Centres of Excellence in the UK:


EB Outreach Clinics

To enable people living with EB in other areas of the UK who cannot easily access the EB Centres of Excellence, DEBRA help support outreach clinics a few times a year around the country giving those people access to specialist healthcare.

Literature and support can also be provided to local GPs and hospitals on request to help them to understand the complexities of supporting patients living with EB and the specialised care EB can require.

Alisa's story

Alisa's story

DEBRA-funded specialist EB nurses provided a lifeline to Alisa’s parents in the early days, showing them how to change her dressings, lance the blisters...a harrowing daily experience dreaded by both Alisa and her mum.

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Natalie's story

Natalie's story

“The DEBRA-funded outreach clinic has had a huge impact on our lives. A massive advantage is that we can see the full specialist EB team from hospital in one place," Natalie.

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