People living with EB have fragile skin. It may blister and tear very easily, including the mouth and throat. Ask the patient or my family for advice. They are the experts. Read more
Working in partnership with the NHS to deliver an enhanced EB healthcare service for people living with EB. The EB centres of excellence have multidisciplinary teams providing expert specialist EB healthcare. Read more
Learn directly from expert clinicians and healthcare professionals. DEBRA sponsors a wide range of events for professionals to advance their knowledge and skills in EB. Read more
Clinical practice guidelines (CPGs) are a set of recommendations for clinical care, based on evidence gained from medical science and expert opinion. CPGs help professionals understand how to treat someone with EB. Read more
This page includes relevant resources for clinicians and healthcare professionals treating and managing EB patients. Please visit the knowledge hub for resources relevant to non-medical professionals. Read more