Harry’s London Marathon story for EB

by Harry Whitbread, 6th March 2025 (Last updated 6th March 2025)

Harry Whitbread, his sister Holly and their dad stand indoors. Harry is wearing a hoodie with the charity name "Debra." They are smiling gently at the camera.

My marathon inspiration

I’m running the London Marathon for my beautiful sister, Holly.

Although Holly has a less severe form of EB (epidermolysis bullosa simplex or EBS), the condition still presents her with daily challenges.

DEBRA have been there throughout Holly’s journey providing support and guidance, from when she started primary school, to now throughout her pregnancy. Holly visits the specialist EB healthcare team at Guy’s and St Thomas’ hospital in London. The charity work in partnership with the NHS and other organisations to make sure those with EB get the healthcare and wellbeing support they need.

My family and I have stayed in one of the DEBRA holiday homes, and have been to a number of DEBRA member events where we were able to connect with other families affected by EB. Holly also gave a talk at one of the events about her experience of living with EB.

My family and I are immensely grateful for DEBRA’s support, and I wanted to give something back to the charity.

Following in my dad’s footsteps

Ian Whitbread running the London Marathon in 2010.

Running the London Marathon has been a goal of mine ever since I watched my dad run it for DEBRA back in 2010. After applying unsuccessfully to run in London last year, I decided to run the Brighton Marathon instead.

It was an incredible experience, and I will never forget crossing the finish line after what felt like an eternity! Having all my friends and family there to support me made it so special and I can’t wait to soak up the atmosphere of the London Marathon in 2025.

Harry standing on the beach with his medal after the Brighton Marathon. — Harry shows his medal after the Brighton Marathon.

My EB impact

My hope is that by raising money, I can enable DEBRA to continue doing their amazing work, whilst also raising awareness for what is still a relatively unknown condition. More importantly, I hope I can inspire others to take on a fundraising challenge of their own.

Training for the London Marathon has given me a real sense of purpose and has been great for my physical and mental health. Not only this but knowing that your hard work is helping to raise funds for such an amazing cause is an incredibly rewarding experience.