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DEBRA Member Matt suffers from EB, but he doesn’t let it stop him from doing anything. Growing up, his skin required round-the-clock care and an intensive and painful bandaging routine to stop his fingers fusing together and prevent repeated scarring from destroying his mobility. With support and advice from DEBRA, his mum was able to provide the care he needed.

“If I couldn’t walk and I couldn’t type then I wouldn’t have the quality of life that I do now – and that is thanks to DEBRA," says Matt.