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Treatments & management

An EB nurse talking with a patient at one of the EB centres of excellence.

Skin and wound care for EB: Tips and resources

Tips and resources for managing wound care for EB, such as how to care for blisters and pain management.

Someone with EB having their dressings changed by a carer.

Pain and itch relief for EB patients

Guidance on itch management and EB pain relief, help for better sleep, information on our support grants, and more.

An arrangement of paper cutouts shaped like feet, labelled with tips from members living with EB.

EB foot care: podiatry advice and guidelines

Podiatry advice for people with EB, including support resources, practical guidance for foot care and health, and tips from our members.

A pregnant woman with her partner.

Managing pregnancy and childbirth with EB

Information and resources to help you manage pregnancy, childbirth, and parenthood with EB.

A person exercises using an agility ladder on the floor, with one foot lifted. A stability ball and workout equipment are visible in the background.

Physiotherapy for EB

Overview of physiotherapy guidelines and recommendations for people living with EB.

Silhouette of a person sitting at the edge of a structure, overlooking a landscape at sunset.

Emotional wellbeing

Tips, information and resources to help support emotional wellbeing for the EB community.

Person sleeps head on arms at a desk with a laptop, books, and a notepad.

Managing sleep and fatigue with epidermolysis bullosa

Learn how epidermolysis bullosa (EB) affects sleep and fatigue, and how you can manage it with tips for people with EB.

A dentist in a blue coat talks with her patient.

EB care: eye, dental, surgery and cancer support

An overview of accessing specialised epidermolysis bullosa (EB) healthcare for eye care, dentistry, surgery, and cancer management.