Skip to content

Support grant FAQs

Please find below a list of frequently asked questions about the DEBRA support grants.

Anyone living with EB or their family or carers.

Download and complete the grant form – either electronically or by hand – and email your application to communitysupport@debra.org.uk or send it to Team Support at DEBRA’s Head Office:

DEBRA 
The Capitol Building
Oldbury
Bracknell
Berkshire
RG12 8FZ

Alternatively, you can talk to your Community Support Manager or EB nurse specialist who will talk to you about your request and fill in a support grant application form for you.

If you don’t have contact with either, you can contact the DEBRA Head Office (call on 01344 771961 or email communitysupport@debra.org.uk) to be put in touch with your Community Support Manager.

Note: Community Support Managers offer a holistic service helping with many different areas of your life as impacted by EB. A support grant request could be the start of (or usually part of) an on-going relationship with DEBRA and your Community Support Manager.

APPLICATION FORM – DIGITAL COPY (WORD)

APPLICATION FORM – PRINTER-FRIENDLY COPY (PDF)

Support grants are available to fund many things that would not normally be covered by statutory services (see Appendix 3 in the DEBRA Community Support Grant Policy). As we offer a personal service where our community support managers get to know you and your needs, we try not to place rigid restrictions on what your funding is used for. 

We have limited funds and priorities are set in line with the DEBRA Community Support Grant Policy. Any support grant needs to meet the criteria laid out in the policy. Your application will be assessed and prioritised against these criteria by your Community Support Manager.

Given the wide range of products and services a support grant may cover, DEBRA Community Support Managers cannot give any endorsement of products or make specialist assessments for equipment. However, using their experience and knowledge your Community Support Manager will usually be able to give some guidance.

 

We try to respond to you within a week. However, occasionally this may be up to two weeks to respond. Urgent requests can be called through to the Community Support Manager for your area to be processed as soon as possible.

Your community support manager will assess your application and make a decision based on:

  • checking that the item/services is not supplied through statutory services
  • that our DEBRA Community Support grants criteria is met (see the DEBRA Community Support Grants Policy for details)
  • Giving a priority level of low, medium or high (see the DEBRA Community Support Grants Policy for details)
  • Checking current availability of charitable funds in the DEBRA Community Support grants budget

Notes:

  • requests for larger sums are discussed and agreed with your community support area or regional manager and the Director of Member Services
  • only support grants that have been authorised are given
  • support grants cannot be given retrospectively

We will pay the supplier directly for an item/service wherever possible. We may give you a cheque, bank transfer or cash but will ask that you sign our terms and conditions stating that you will use the money for the purpose given and send all receipts for items/services received to DEBRA.

Note: If you have applied for a support grant you will receive a response from us stating whether you have been successful or not. Please do not assume funding will be paid unless you have received confirmation of the offer of a support grant.

There is no limit, however each grant will need to meet our criteria and is dependent on the budget available.

Any requests for large amounts of money (or if you have previously had several support grants adding up to a large amount of money) need to be agreed and authorised by your community support manager and the Director of Member Services.

As a charity we rely on donated funds. We will have a limited budget so not every grant application will be successful.

Your support grant will cover the cost (or part of the cost) of an item or service. Any items or equipment purchased with a support grant become your property. Similarly, any services purchased with a support grant are your responsibility. We do not offer insurance or on-going maintenance for items we have funded unless otherwise agreed.

If there are ongoing problems your Community Support Manager will offer support in the same way they would help anyone with equipment or services they had privately purchased themselves.

It is sometimes possible to return unwanted equipment but because of legal, safety and storage implications, please check with your Community Support Manager before doing so.

If you are not given a support grant it will usually be because it does not meet our criteria or because our budget cannot currently support it. You will be told the reason why and if it may be possible to apply again in the future. Your Community Support Manager may suggest alternative forms of support, including signposting you to other agencies or charities that may be of help to you.

Please talk to your Community Support Manager in the first instance. If you are still unhappy then contact the Regional Community Support Manager for your area. If you have spoken to them and want to speak to someone else, then please contact CST senior management. Contact details can either be found on our website or you can call DEBRA Head Office on 01344 771961.

If your application is successful and you decide to accept the offer of a support grant, please read our terms and conditions and acknowledge receipt of items, equipment or services funded by the support grant. This is an important part of the charitable expenditure audit process that we are legally required to undertake.

We would also love to hear feedback about how your support grant has made a difference. Please contact your Community Support Manager and let them know.

Page published: October 2024
Last review date: February 2025
Next review date: February 2026

Logo of DEBRA UK. The logo features blue butterfly icons and the organization's name. Underneath, the tagline reads "The Butterfly Skin Charity.
Privacy Overview

This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.