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End of life and bereavement support

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Bereavement support for the EB community

Practical and emotional EB bereavement support for before and after a death, and signposts to other organisations that may be able to help.

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End of life and palliative care for epidermolysis bullosa (EB)

Guidance on end of life and palliative care, and how to get the care and support that you or a loved one need.

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Remembering your loved one

Writing a eulogy to remember your loved one can be overwhelming. Take your time and think about what you want to say; write from the heart.