Resources for healthcare professionals
This page includes resources for healthcare professionals treating and managing EB patient care. Please visit our EB support and resources for content relevant to non-medical professionals.
Publications
In addition to DEBRA International’s Clinical Practice Guidelines, there are a number of additional resources available to professionals managing EB patient care.
- Surgical procedures
- Hand Splinting Recommendations and Exercises for Children with epidermolysis bullosa
- © Birmingham Children’s Hospital NHS Trust, available here by kind permission of the Birmingham Children’s Hospital Occupational Therapy team
- Birmingham Women’s & Children’s NHS Foundation Trust has also produced a variety of leaflets and educational videos for professionals.
How to make a referral to the EB Community Support Team
Our EB Community Support Team works closely with medical and health professionals. To learn more about this referral process, please read the referrals policy.
Please check our policies for the latest information.
EB-CLINET
EB-CLINET is an initiative to improve medical care for people with EB by encouraging collaboration between health care professionals working with EB.
Mental Health and Rare Disease
Medics 4 Rare Diseases have launched a new online course, ‘Mental Health and Rare Disease’, consisting of 8 interactive lessons.
DISCLAIMER: DEBRA cannot be held responsible for the content of external sites.
Page published: October 2024
Last review date: March 2025
Next review date: March 2026