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EB helpline

01344 577689

We understand that it can be difficult to live with or support someone else who has any form of EB. However, you are not on your own. DEBRA’s EB Community Support Team is here to help and can share the latest, evidence-based information and resources to support you to live well with EB.

Our EB Helpline team can:

  • Provide information and resources to support you at every stage of life with EB
  • Be a listening ear and answer your questions
  • Help you find any further support you need

Please be aware we are not medically or legally trained and cannot provide detailed financial or benefits advice or specialist emotional support.

You can contact us via the EB Helpline on 01344 577689 from 8am to 5:30pm, Monday to Friday (except English bank holidays), or email us at communitysupport@debra.org.uk. Don’t worry if you can’t call during these times – please just leave us a message and we will get back to you as soon as we can.

For other support and referrals to the EB Community Support Team, please continue to use the same number or send us an email. Our current response time is within four working days, but our team leaders will pick up any urgent referrals and allocate them accordingly.

For any membership related queries, please call 01344 771961 (option 1).  

If you know anyone else living with EB who might benefit from giving us a call, please let them know about our new phone service. We’re here to help people with all types of EB however we can.

You can find out more here about all the support we can offer, such as our support grants for specialist items to help manage EB symptoms.

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