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Our partners

We are proud to work with healthcare, research, and corporate partners across the UK and internationally.

Together, we can reach new audiences and raise much-needed awareness of EB. We can gain from their expertise and work collaboratively to provide the specialist services our members need most and drive a programme of world-class research that could bring hope and improved outcomes for thousands of people living with all types of EB.

Together, we can achieve our vision of a world where no one suffers with the pain of EB.

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Healthcare & research partners

Our ambition is to find treatments to lessen the day-to-day impact of EB, and cure(s) to eradicate EB. To achieve this we need a global and collaborative approach.

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Corporate partners

Our corporate partners play a vital role in helping us raise awareness, supporting our campaigns, providing in-kind services as well as funding for research, healthcare, community support and respite.