Our people

We cannot stop the pain of EB on our own. This is why we’re extremely grateful to count on the support of our royal patron, our president, vice presidents, and ambassadors who help us raise awareness of EB, of DEBRA UK, and the work we do.

We are also very grateful for the support of our independent advisor, who supports our research programme, and our Board of Trustees, who voluntarily give their time to oversee the management and administration of the charity ensuring that it remains fully focused on the needs of its members and the wider EB community.