How we are governed

Our Board is made up from a majority of those with a direct experience of EB, and those with skills and experience that will add value to the leadership of DEBRA.

Our Board of Trustees includes people from a variety of backgrounds and skills. To ensure best business practice, we have four board-level committees.

Find out what we've achieved over the past year and how we've put your money to good use supporting people living with EB.

Our senior leadership team works towards our mission of improving the quality of life for people living with EB and our search for a cure.

We are committed to ensuring that we can attract and retain a talented executive team with the skills and experience required to fulfil our objectives.