About EB & DEBRA UK
Learn more about epidermolysis bullosa (EB), also known as butterfly skin. A painful genetic skin blistering condition that causes the skin to become very fragile and tear or blister at the slightest touch.
You’ll also find here information about DEBRA UK and how we support, empower, and advocate for those affected by EB.
Did you know…?
You can become a DEBRA UK member if you live with EB or support someone with EB: parents, carers, family members, healthcare professionals and researchers. Membership is free and gives you access to practical support, involvement opportunities, and events to connect with others in the EB community.
Become a DEBRA member