Become a DEBRA member
Becoming a member is free, easy, and gives you access to our wide range of support and benefits.
Who can be a member?
DEBRA UK membership is open to anyone living with any type of epidermolysis bullosa (EB). You can also be a member if you are supporting someone with EB as a:
- Parent
- Carer
- Family member
- Healthcare professional
- Researcher
Become a DEBRA member
Why become a member
Community and connection. Get access to exclusive events and opportunities to connect with others living with EB.
Just by being a member, you’ll also strengthen our community that advocates for better research, specialist healthcare, and rights for everyone affected by EB in the UK.
Be the first to know. – Get the latest news and resources for people with EB and hear about new treatments when they become available.
Know your rights. – Access expert guidance so you know your rights in every situation. From help with travelling, to adjustments at your place of work and everything in between.
We’re here for you. – Use our website’s EB information and resources, and have our team’s guidance and listening ear to support you through every stage of life. Call our EB Help Line on 01344 577689, available Monday-Friday, 8am-5:30pm.
Exclusive holidays. – Enjoy stays in our beautiful range of holiday homes, based around the UK in award-winning 5* parks, at highly discounted rates.
Financial support. – Get support grants for items to help you live better with EB, financial guidance, and our team’s expertise to help you access government benefits you may be eligible for.
Have a voice. – Exciting opportunities to get involved in member projects, help shape the future of our EB services, and decide what research we’ll fund next.
And more!
Sign up today to receive your member badge, membership guide, and all you need to start benefiting from DEBRA membership.
Become a DEBRA member
Why we need new members like you
DEBRA is always here if you need us, but we need you too. The more members we have, the easier it is for us to:
Raise awareness of EB. – Show how many people are living with EB, and help others understand its impact and why specialist care and support are essential for everyone who’s affected.
Support our research. – Having more members can give us more data to help our research into repurposing drugs and finding new EB treatments.
Give the EB community a louder voice. – A stronger collective voice from more members helps us lobby with the government, NHS, and other organisations to improve services for all people with EB.
Learn more about DEBRA
We are the patient support organisation for people affected by EB, also known as butterfly skin. We exist to provide community care and support services that help improve quality of life for every person living with or directly affected by any type of EB.
Apart from the support we offer, we are also one of the largest investors in EB research globally. We fund pioneering research that aims to find effective treatments for all types of inherited EB, to improve quality of life and hopefully pave the way towards finding cures.
To get a further overview of everything we offer to help you make the most of your membership, you can check out the digital version of our complete guide to DEBRA membership.
There really isn’t any reason not to become a member! It doesn’t cost you anything and you can apply to join in minutes.
You may never need us, but we are here for you when you do. And by becoming a member you can help ensure that other people living with, or directly affected by any type of EB, get the support they need.