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Your voice, your impact

When members get involved, incredible things happen. Explore our past projects below to see how members have shaped them and the real impact member involvement has made.

Strengthening Podiatry through the Member Voice

ART-EB Member Collaboration

Annual Application Clinic

Shaping Clinical Practice Guidelines

Co-designing EB products

Bringing Science to Life. Factsheets Shaped by the EB Community

Guided by you. Values that reflect our community

The Story Behind the Story: How Members Shaped Guardians of EverBright

Help us shape the future of DEBRA’s member services

We want to make life better for those living with EB. Please tell us what we already do for our...

The Impact Our Members Make on EB Research

EB Priority Setting Partnership Study

Website review team

How members helped transform EB support: The Pathways Project

EB insights study

Social media experiences of young people with visible differences