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EB research involvement
People with lived experience of EB are central to helping us decide what research we fund. Their involvement also strengthens the research being carried out. This could be giving feedback on research applications to help decide what projects we fund or taking part in the research itself. Click on the different projects below to see what they’re about and how you could be involved in it.
You don’t need to have a science background to take part. We want a variety of people from across the country with experiences of different types of EB to take part, so that our decisions represent as many people in the EB community as possible. Projects may also provide the opportunity to get together with other members interested in EB research.