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The 2.6 Challenge - Save the UK’s Charities

The 2.6 Challenge - Save the UK’s Charities

This year's 2.6 Challenge is now finished, so thank you to everyone who helped #FightEB by taking part! It has been great to see your challenges, including: running a relay marathon, doing 26 laps of the garden, chipping 26 golf balls and running 2.6 miles each day for a week. So thank you again to our fantastic challengers for all their support. 


Calling all Home Heroes – help #FightEB and enter the new 2.6 challenge!

With many fundraising events, like the London Marathon, postponed, the largest events‘ organisers in the UK are launching the 2.6 challenge to help save the UK’s charities by raising £67 million before the end of April. There’s no need to be a marathon runner to take part – this is a challenge for all ages and abilities. Just get thinking of an activity based around the numbers 26 or 2.6 and complete it from Sunday April 26, when the London Marathon would have taken place, until Sunday 3 May. 

Whether you're running around the balcony for 2.6 miles, holding a 26 hour silence, doing 26 press ups with the dog on your back, juggling for 2.6 minutes, taking 26 steps around the garden every day, or bench pressing 26 kilos with your grandchildren, you can enter the 2.6 Challenge.

Share your challenge on social media with #twopointsixchallenge and #FightEB


Find out more and set up your page here: and ask your friends and family to sponsor you – if each challenge raises £2.60, £26, or £260, every penny counts and could make a huge difference to people living with EB who need our help now more than ever, including people like Scott:

“I am in self-isolation, in fact strict “shielding” and can’t leave my home because of my condition, EB. Without DEBRA’s emergency food package I would be without food. They helped to set me up with a local food service long term and arranged a food package immediately to stop me from going hungry before this service is in place. I cannot thank them enough” Scott, DEBRA member.


What is EB and why do we need your help?

Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.

Those born with EB have skin so fragile they are called 'butterfly children' – their skin is quite simply as fragile as the wing of a butterfly.

Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. Complications as a result of secondary infection and extensive scarring are factors that people living with EB often have to face.

Tragically, certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that more than 5,000 people are living with EB in the UK, and 500,000 worldwide.

Find out more about EB here.


Please note - it is important to follow the government guidelines on social distancing when completing your 2.6 Challenge. 

Need help or ideas? If you have any questions please send our Supporter Care team an email –

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