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Help us to #FightEB

Help us to #FightEB

Living a life free of pain - this is the wish of those suffering from EB (Epidermolysis Bullosa), a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.

There are an estimated 500,000 people suffering from EB worldwide, and one in 227 of us carry a defective gene that causes the condition.

The money raised by everyone who takes part in the #FightEB appeal could help improve the health and wellbeing of people living with EB, fund specialist healthcare to provide high quality holistic care, and support pioneering research that is leading to improved treatments and, ultimately, a cure for this complex and distressing condition.

Thanks to all of your fantastic efforts, we have been able to raise over £250,000 in our #FightEB appeal. However, we must work together to ensure that the fight does not end. Donate directly or get in touch for fundraising ideas. Help now - there is currently no cure.

Check out our Members stories from across the EB Community and learn how, despite having this debilitating condition, they don't let EB defeat them.

Together, we #FightEB.

 

 

 

 

 

 

 

If you would like to tell your story about living with EB, become a DEBRA Media Ambassador!