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Help us to #FightEB

Help us to #FightEB

We’ve launched our second #FightEB campaign as we need to raise £482,639 to aid mental health, pain management, wound care and itch in those living with EB as we drive towards a cure for EB.

“One of the most frustrating things for me is the itching. It’s like my whole body is on fire and I have ants crawling all over me. It’s so overwhelming.” - Maya.

Epidermolysis Bullosa (EB) is a group of genetic skin conditions that cause the skin to blister and tear at the slightest touch.

Painful open wounds and sores form where this exceptionally fragile skin is damaged – in some cases, internal linings and organs are also affected. As a result, skin trying to repair the wound can cause unimaginable itching. Complications as a result of secondary infection and extensive scarring are factors that people living with EB often have to face.

Tragically, certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that more than 5,000 people are living with EB in the UK, and 500,000 worldwide.

We receive no government funding for our work. Without you, we can’t provide life-changing care and support to people suffering from EB or fund research into effective treatments and a cure for this potentially fatal condition.

Together we #FightEB and together we will beat EB.

join the #FightEB movement