A bandaged hand being held by the other hand.

You can become more involved in DEBRA UK and the research we fund in several ways:

 

Become a member 

If you would like to become a member of DEBRA UK you can join us by clicking the button below.

 

Become a member

 

Share your story

You can share your story here to increase awareness and understanding of what really matters to families living with EB Member stories of living with EB.

To find out about specific research studies that you could be involved in, please talk to your specialist doctor or nurse. They will be able to find out if you could participate in research local to you. 

Clinical trials involving EB are listed here by the US National Library of Medicine.

It is important to us to hear the voices of families living with EB to help us decide which research projects to fund.If you would like to let us know your thoughts about our research or would be happy for us to contact you to ask for your opinion on what research we fund, please leave your details here.

 

Donate 

Please consider donating to DEBRA UK or fundraising for us to help fund our life-changing research. 

Donate