Finances & benefits

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Latest

BE the difference for EB

With your support, we will continue investing in drug repurposing clinical trials and providing an enhanced programme of community care and support for people living with EB.
DEBRA Quarterly Update 2024 Q1

An update from our board of trustees, including key activities undertaken in the first quarter of 2024, and the progress we are making to BE the difference for EB.
08. Does 80 Days Global require me to travel?
07. Is there a fundraising target?

EB Connect

We are pleased to be able to share with you EB Connect, a private online social collaboration platform for the global EB community.
Togetherall online community support

DEBRA members have free access to online mental health service Togetherall, where they can share experiences and support each other in a safe and confidential community.
Accessing specialist EB healthcare services in Scotland

For EB patients and their families living in Scotland, specialist EB healthcare services are based out of the Royal Hospital for Children in Glasgow (paediatrics) and the Glasgow Royal Infirmary (adults).
End of life & bereavement

We can offer a listening ear when grieving, refer you for further support in your local area, help make funeral arrangements, help you access benefit entitlements, as well as assist in creating a DEBRA remembrance page.
Learning & education

People living with EB may require support in their educational journey, as well as an understanding of EB by their schools and peers.
Work & employment

If you are living with EB you may require some support throughout the employment process - from job searching and interviewing to understanding workplace and employment rights.
Carers

Every day 6,000 people become unpaid carers. You may find this information useful whether you yourself are a carer yourself or you receive support from a carer.
Mental health & emotional distress

If you are struggling and need support, our Community Support team is available for first line emotional support, or to signpost to further psychological support, from Monday - Friday (9am - 5pm).
Member events

We recognise the significant value of peer support to share experiences with friends and other families. DEBRA events offer you the opportunity to get together and enjoy social activities.
Meet the Community Support Team

Meet the team delivering essential EB support services, including practical, financial and emotional support and advocacy to the EB community.