Parent Pitstop: Exchange parenting tips and experiences

illustrations of four people talking to each other. The illustration style is simple, with no facial features and all clothes and skin tones are shades of green and lilac. They have blank speech bubbles above them. A female figure, wearing a hijab, i

This session will be an opportunity to connect with other members, and exchange tips and experiences of parenting children with EB.

How to join

You can contact our Membership Team via [email protected] or phone 01344 771961 (option 1) to register, learn more or for any accessibility requirements.

Please refer to our online event guidelines for more information on making time together enjoyable for everyone.

Booking for this event has now closed.

Latest

Your feedback is vital

We welcome your feedback. Please let us know if you have any suggestions for improvements to our EB information. We’d also love to hear from you if you think we are doing something well.
DEBRA Fight Night 2023, hosted by Frank Warren, raises over £180,000

We're delighted to announce that our annual Fight Night event has raised over £180,000 to help #FightEB, making it DEBRA's most successful Fight Night in 15 years!
DEBRA SLT members meet with Jennie Minto and Bob Dorris at Scottish Parliament

We took a further step on our government campaigning journey today (Wednesday 22nd November) with a meeting held at the Scottish parliament with Jennie Minto MSP for Argyll and Bute and Minister for Public Health and Women's Health in Scotland, and our meeting sponsor, Bob Dorris, MSP for Glasgow Maryhill and Springburn.
DEBRA SLT members meet with Michael Gove and James Sunderland at Westminster

Today (Tuesday 21st November), DEBRA CEO, Tony Byrne, along with our Director of Research, Dr Sagair Hussain, and Director of Fundraising, Hugh Thompson, met with Michael Gove, MP for Surrey Heath, and James Sunderland, MP for Bracknell, at Westminster.