Research and Health webinars
Our Research and Health webinar series are hosted by DEBRA UK Director of Research Dr Sagair Hussain and feature a variety guests speaking live about their expertise in EB research and healthcare. These sessions will be great opportunities to learn about different topics relating to EB, and have your questions answered by experts. They are open to all and our speakers aim to use plain language but will provide the opportunity to understand EB research and healthcare in greater depth.
Register for upcoming webinars and view the recordings from previous events below.
Webinars coming up

Join Prof Albena Dinkova-Kostova, Professor of Chemical Biology at the University of Dundee School of Medicine (UK), at the usual time of 1pm.
Join the webinar to find out more and ask your questions about…
- How EBS skin cells respond to inflammation
- The development of strategies for protection against chronic conditions
- The role of Nrf2, a protein involved in responses to inflammation, and how it could be targeted in EBS
More about this webinar’s speaker:
Prof Albena Dinkova-Kostova is a Professor of Chemical Biology at the University of Dundee School of Medicine (UK). She graduated in Biochemistry and Microbiology from Sofia University (Bulgaria) and obtained her PhD degree in Biochemistry and Biophysics from Washington State University (USA). She subsequently trained in Pharmacology at Johns Hopkins University School of Medicine (USA), where she continues to hold an Adjunct Professor position. She joined the University of Dundee in 2007 as a Research Councils UK Academic Fellow and a research group leader. Her group collaborates with basic scientists and clinicians, and with the pharmaceutical industry. In her research, at the interface of Chemical Biology and Medicine, she is committed to understanding how cells and organisms respond to oxidative, inflammatory, and metabolic stress, and is working towards development of strategies for protection against chronic disease. Over the past seven years, she has been named among the top influential academics in Clarivate’s Highly Cited Researchers lists.

Join Dr Laura De Rosa, associate professor of applied biology at the University of Modena and Reggio Emilia (Italy), at the usual time of 1pm.
Join the webinar to find out more and ask your questions about…
- Dominant inheritance of EB – from one parent with EB (not two unaffected parents as in recessive inheritance).
- How gene editing can work for dominant conditions.
- Advances in gene editing techniques and applying them to restore EBS skin strength.
More about this webinar’s speaker:
Dr Laura De Rosa is an associate professor of applied biology at the University of Modena and Reggio Emilia, Italy. Her research focuses on epithelial stem cells and the development of innovative gene-editing strategies for rare genetic disorders affecting epithelial tissues, with a particular emphasis on Epidermolysis Bullosa. She has coordinated multiple clinical studies in gene therapy for Epidermolysis Bullosa and currently leads translational research projects aimed at advancing personalized gene-therapy approaches toward future clinical applications.

Join Dr Matthew Caley, Senior Lecturer in Cell Biology at Queen Mary University of London (UK), at the usual time of 1pm.
Join the webinar to find out more and ask your questions about…
- What is an EB model?
- How models of EB skin are created in the laboratory
- The importance of testing potential therapies in models before giving them to people in clinical trials
More about this webinar’s speaker:
Dr Matthew Caley is a Senior Lecturer in Cell Biology at the Blizard Institute, Queen Mary University of London (QMUL), UK. He has more than a decade of experience in skin research, matrix biology and generating in vitro skin models. He is currently running pre-clinical trials focused on a range of different skin diseases including JEB.

Join Dr Emily Gorrell, Assistant Professor of Dermatology at the University of Colorado, at the later time of 8pm.
Join the webinar to find out more and ask your questions about…
- Gene therapy carried out on cells outside the body
- Clinical trials on gene therapy
- Current progress
More about this webinar’s speaker:
Dr Emily Gorell is an Assistant Professor of Dermatology at the University of Colorado, where she specializes in the treatment of patients with blistering diseases and complex medical dermatology and serves as the Associate Director of Clinical Research. Dr. Gorell has been involved in researching treatments for epidermolysis bullosa for over 15 years, particularly gene therapies. She sees patients at both the Children’s Hospital of Colorado and the University of Colorado Hospital, with a focus on transition of care and treatment of adults with EB and other complex skin conditions.
Watch previous webinar recordings
Tuesday 4 February 2026
Zooming in on laminin 332: How advanced imaging helps us understand EB
Join Dr Kevin Hamill, senior lecturer in eye and vision sciences at the University of Liverpool, UK.
Watch the webinar recording to find out about…
- Super-resolution microscopy to look at proteins involved in EB
- The protein laminin 322 that is affected in JEB
- The role of laminin 322 in eyes, and loss of vision in JEB
Wednesday 14 January 2026
Strengthening and signalling proteins in skin cells
Join Dr Kristin Seltmann, Senior Scientist at ETH Zurich.
Watch the webinar recording to find out about…
- How EBS skin cells are weakened by lack of keratin
- How skin cells communicate with each other
- How vesicles enable communication between skin cells
- How vesicle-mediated signalling contributes to skin diseases
Wednesday 3 December
Therapeutic approaches for the treatment of EB Simplex
Join Prof Bishr Omary, Professor of Biomedical Sciences, and Senior Vice Chancellor for Academic Affairs and Research at Rutgers University, USA.
Watch the webinar recording to find out about…
- The skin protein, keratin, affected in EB Simplex (EBS)
- Screening for EBS drugs
- Characterising potential EBS drugs
Wednesday 5 November
Engineering human tissue models of EB Simplex to discover new therapeutic strategies
Join Dr Cory Simpson, MD, PhD, FAAD (he/him), Assistant Professor in the Department of Dermatology at the University of Washington in Seattle.
Watch the webinar recording to find out about…
- Growing skin cells into a 3D model of skin
- Using CRISPR gene editing in 3D skin models
- Finding and testing new treatments for EB
Wednesday 1 October
Our Future Health: health research and the EB community
Join Anna Curson (Strategic Partnerships Manager), Caroline Collins (Strategic Partnerships Manager) and Kate Harvey (Head of Participant and Public Involvement) from Our Future Health.
Watch the webinar recording to find out about…
- What Our Future Health is and why it’s important
- What it can offer for EB research and how to get involved
- What our participants have to say and where to find out more
Wednesday 9 July
RNAs regulate adhesion forces in skin repair
Join Dr Svitlana Kurinna, MRC Fellow and group leader at the University of Manchester, UK, Division of Cell Matrix and Regenerative Medicine.
Watch the webinar recording to find out about…
- Protein and RNA molecules working together in skin cells
- Measuring adhesion forces (stickiness) between cells in skin regeneration and repair
- The involvement of micro RNAs (miRNA) in sticking upper and lower layers of skin together (adhesion at the epidermal-dermal junction)
Thursday 5 June
Demystifying Palliative and End-of-Life Care: Optimizing Quality of Life
Join Dr Mark Popenhagen, Associate Professor in the Department of Anesthesiology–Pediatric Anesthesiology at the University of Colorado School of Medicine and Associate Director of Pain Services–Pain Psychology at Children’s Hospital Colorado, in the United States.
Watch the webinar recording to find out about…
- Interdisciplinary care and managing symptoms in EB
- Palliative and end-of-life care for people with EB
- Grief and bereavement
Wednesday 7 May
Slowing EB scarring and symptoms in the mouth
Join Dr Tom Robinson, Assistant Professor of Healthcare Technologies at the University of Birmingham, UK.
Watch the webinar recording to find out about…
- Mouth symptoms in EB
- Large sugar molecules – polysaccharides
- Developing polysaccharide spray therapies for EB
Wednesday 2 April
Haired scalp – a body site protected from blistering in EB?
Join Prof Desmond Tobin, Director of The Charles Institute of Dermatology at University College Dublin.
Watch the webinar recording to find out about…
- Hair and scalp involvement in EB
- What protects scalp skin from blistering
- Developing therapies to protect blister-prone skin
Wednesday 5 March
RDEB scarring and cancer in the era of multiomics
Join Dr Inês Sequeira, Senior Lecturer at Queen Mary University London, UK.
Watch the webinar recording to find out about…
- Healing and scarring in the mouth
- Identifying new ways to help EB mouths and skin heal
- State-of-the-art multiomics technologies in EB
Wednesday 5 February
Exploring drug discovery in EB
Join Dr Roland Zauner, Program Lead Drug Discovery & Repurposing at the EB Haus, Salzburg, Austria.
Watch the webinar recording to find out about…
- Targeted therapies for EB
- Drug screening to identify new EB treatments
- New technological trends in drug discovery
Tuesday 28 January
Gastrointestinal problems in EB
Join Dr David Brumbaugh, MD MSCS FAAP, Associate Professor at the University of Colorado School of Medicine, and Chief Medical Officer at the Children’s Hospital Colorado USA.
Watch the webinar recording to find out about…
- Digestive problems associated with EB
- The effects of digestive symptoms on children and adults living with EB
- Treatment options for the issues EB causes with digestion
Wednesday 4 December 2024
The immune system and the skin
Join Dr Emma Chambers, a researcher and lecturer at Queen Mary’s University, London.
Watch the webinar recording to find out about…
- Our ‘biological army’ – the immune system cells and proteins
- How immune system cells and proteins cause inflammation in our skin
- How anti-inflammatory therapies could work in EB
Wednesday 6 November 2024
The essentials of gene and cell therapies for EB
Join Dr Su Lwin, a dermatologist and honorary lecturer at St John’s Institute of Dermatology and King’s College London.
Watch the webinar recording to find out about…
- The science behind gene therapies for EB
- How stem cell therapies can help EB symptoms
- How these therapies work in practice
Wednesday 2 October 2024
How breathing can be affected by EB
Join Dr Rob Hynds, a Senior Research Fellow at University College London.
Watch the webinar recording to find out about…
- How different types of EB can affect breathing and the lungs.
- Cell and gene therapy that can be used to help people with EB.
- New treatments Dr Hynds’s team are working on to help people with EB with their breathing.
Wednesday 4 September 2024
Genetic Counselling with Kathryn Moore
Join Kathryn Moore, a genetic counsellor at the Yorkshire Regional Genetic Service based in Leeds.
Watch the webinar recording to find out about…
- Inheritance patterns of EB
- Parents’ genetic testing options before getting pregnant
- Genetic testing during pregnancy
Please note: Research and Health webinars are structured differently to our other online events as we will be recording the guest speakers and presentations. For your online safety and security, you will not be able to use your camera or chat directly with other attendees.