This website uses cookies so that we can provide you with the best user experience possible. Cookie information is stored in your browser and performs functions such as recognising you when you return to our website and helping our team to understand which sections of the website you find most interesting and useful.
Research and Health webinars
Our Research and Health webinar series are hosted by DEBRA UK Director of Research Dr Sagair Hussain and feature a variety guests speaking live about their expertise in EB research and healthcare. These sessions will be great opportunities to learn about different topics relating to EB, and have your questions answered by experts. They are open to all and our speakers aim to use plain language but will provide the opportunity to understand EB research and healthcare in greater depth.
Register for upcoming webinars and view the recordings from previous events below.
Webinars coming up
Join Dr Roland Zauner, Program Lead Drug Discovery & Repurposing at the EB Haus, Salzburg, Austria.
Come along to listen and ask your questions about…
- Targeted therapies for EB
- Drug screening to identify new EB treatments
- New technological trends in drug discovery
More about this event’s guest speaker:
Dr Zauner is a trained molecular biologist with a background in engineering and software development. He has been involved in EB research for more than nine years at the EB House in Salzburg, Austria, with a particular interest in tumour biology and wound healing. He is involved in the development of novel minimally invasive tumour diagnostics and leads a preclinical drug discovery programme focused on the repurposing of drugs for the treatment of cancer.
Join Dr Inês Sequeira, Senior Lecturer at Queen Mary University London, UK.
Come along to listen and ask your questions about…
- Healing and scarring in the mouth
- Identifying new ways to help EB mouths and skin heal
- State-of-the-art multiomics technologies in EB
More about this event’s guest speaker:
Dr Inês Sequeira is a Group Leader and Senior Lecturer at the Barts Centre for Squamous Cancer – Institute of Dentistry, QMUL, UK. She has been studying stem cell and cancer biology for the past 20 years. Her research focuses on mouth cancer and how wounds heal differently inside the mouth.
Previous webinars
Join Dr David Brumbaugh, MD MSCS FAAP, Associate Professor at the University of Colorado School of Medicine, and Chief Medical Officer at the Children’s Hospital Colorado USA.
Watch the recording to find out about…
- Digestive problems associated with EB
- The effects of digestive symptoms on children and adults living with EB
- Treatment options for the issues EB causes with digestion
More about this event’s guest speaker:
Dr Brumbaugh is a pediatric gastroenterologist and serves as Chief Medical Officer of Children’s Hospital Colorado, which is the largest pediatric hospital in the Rocky Mountain region. His clinical areas of focus include general pediatric gastroenterology as well as digestive problems in children/adults with Epidermolysis Bullosa and neuromuscular disease.
Join Dr Emma Chambers, a researcher and lecturer at Queen Mary’s University, London.
Watch the recording to find out about…
- Our ‘biological army’ – the immune system cells and proteins
- How immune system cells and proteins cause inflammation in our skin
- How anti-inflammatory therapies could work in EB
More about this event’s guest speaker:
Dr Chambers is an immunologist based at the Blizard Institute at Queen Mary University of London. She was awarded an Oliver Thomas EB Fellowship studying whether existing anti-inflammatory drugs can reduce EB blisters caused by immune system proteins and cells.
Join Dr Su Lwin, a dermatologist and honorary lecturer at St John’s Institute of Dermatology and King’s College London.
Watch the recording to listen to questions about…
- The science behind gene therapies for EB
- How stem cell therapies can help EB symptoms
- How these therapies work in practice
More about this event’s guest speaker:
Dr Lwin has more than 10 years’ experience in EB research, in particular in the field of gene and cell therapies. She is also dedicated to advancing drug repurposing for all types of EB.
Join Dr Rob Hynds, a Senior Research Fellow at University College London.
Watch the recording to listen to questions about…
- How different types of EB can affect breathing and the lungs.
- The cell and gene therapy that Dr Hynds works on, and how it can be used to help people with EB.
- The new treatments Dr Hynds’s team are working on to help people with EB with their breathing.
More about this event’s guest speaker:
Rob trained as a cell biologist at Durham University, University College London (UCL) and The Francis Crick Institute before establishing the EpiCENTR research group at the Zayed Centre for Research into Rare Disease in Children at UCL in 2022. Rob’s team work closely with dermatologists and ear, nose and throat surgeons at Great Ormond Street Hospital to investigate types of EB that affect the respiratory system, and develop innovative therapies based on cutting-edge cell and gene therapy research.
Join Kathryn Moore, a genetic counsellor at the Yorkshire Regional Genetic Service based in Leeds.
Watch the recording to listen to questions about…
- Inheritance patterns of EB
- Parents’ genetic testing options before getting pregnant
- Genetic testing during pregnancy
More about this event’s guest speaker:
Kathryn has been a genetic counsellor for the last 6 years working across preimplantation genetic testing, cancer, cardiac and prenatal genetics. She has an Undergraduate degree in Medical Genetics from the University of Leicester and a Masters in Genetic Counselling from the University of Sydney. After studying at the University of Sydney she spent a couple of years working for New South Wales Health in Australia before moving back to the UK, to the Yorkshire Regional Genetic Service based in Leeds. She achieved her registration with the Academy for Healthcare Science since returning to the UK and has been representing Genetic Counsellors who are new to the profession on the Association of Genetic Nurse and Counsellors committee for the last two years. As part of her role, Kathryn hopes to improve awareness about the options available in genetics so that individuals and families can make informed decisions about the health care of their families.
Please note: Research and Health webinars are structured differently to our other online events as we will be recording the guest speakers and presentations. For your online safety and security, you will not be able to use your camera or chat directly with other attendees.