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The language of EB research: Key terms and acronyms explained 

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We understand that some of the words used in relation to medical research can be quite technical and by knowing a bit more about what these terms mean you can get a better understanding of the project and how it could potentially benefit you or someone that you care for.  

This is why we have developed a helpful list of words, in alphabetical order, that are commonly used in relation to EB research. We’ve also included any acronyms that are widely used, for example the initials of words put together, like “EB”, which is widely used instead of epidermolysis bullosa. 

If you have any suggestions of words that you think should be added to the glossary, please contact abigail.witherden@debra.org.uk 

EB research glossary

 

Page published: October 2024
Last review date: July 2025
Next review date: July 2026

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