Our reports

DEBRA quarterly updates

Following on from the change in DEBRA’s membership structure in 2022, the Board has been considering ways of improving how we keep our membership, and those interested in the work of DEBRA, up to date on the activities and progress we are making in our fight against EB.

Therefore, in addition to our existing communications platform, we will be producing a short update with some of the highlights from the previous quarter.

Read DEBRA Quarterly Update 2023 Q1

Read DEBRA Quarterly Update 2023 Q2

Read DEBRA Quarterly Update 2023 Q3

Read DEBRA Quarterly Update 2023 Q4

Read DEBRA Quarterly Update 2024 Q1

Annual reports and accounts

Find out what we've achieved over the past year and how we've put your money to good use supporting people living with EB.

2022 Annual Report

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Front cover of annual trustees report 2021

2021 Annual Report

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2020 Annual Report

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2019 Annual Report

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2018 Annual Report

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2017 Annual Report

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2016 Annual Report

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2015 Annual Report

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2014 Annual Report

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2013 Annual Report

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2012 Annual Report

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2011 Annual Report

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2010 Annual Report

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Pay & salaries

Please visit our Gender Pay Gap and Executive pay pages for more information.

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BE the difference for EB

With your support, we will continue investing in drug repurposing clinical trials and providing an enhanced programme of community care and support for people living with EB.
DEBRA Quarterly Update 2024 Q1

An update from our board of trustees, including key activities undertaken in the first quarter of 2024, and the progress we are making to BE the difference for EB.
08. Does 80 Days Global require me to travel?
07. Is there a fundraising target?

Our partners

At DEBRA we are proud to work in partnership with healthcare, research, and corporate partners across the UK and internationally.
ESG - Environmental, Social and Governmental

At DEBRA, we are working hard to become a more sustainable and environment-friendly organisation in everything we do and everyone we work with.
How we spend our money

Find out how DEBRA fundraises and the activities that its fundraising supports.
Equality, Diversity & Inclusion

For a community to thrive, every member needs to feel valued, listened to, respected, welcome and represented.
Our senior leadership team

Our senior leadership team works towards our mission of improving the quality of life for people living with EB and our search for a cure.
Our trustee board

Our Board of Trustees is made up from a majority of those who have a direct experience of EB, who either have EB themselves or have a close family member with EB, and those who have skills and experience that will add value to the governance and leadership of DEBRA.
Our policies

All of our policies can be found here on our website, which covers the different areas of our work.
Our committees

Our Board of Trustees includes people from a variety of backgrounds and skills. To ensure best business practice, we have four board-level committees.
Our strategy

Together, over the past 40 years, we have achieved a lot and have a proud history. We were the first organisation in the world established to focus on EB.
Our values

Our values provide a set of common beliefs, behaviours and understanding to support and enable us to work collectively to achieve our mission.