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Coronavirus (COVID-19) Urgent Appeal

Emergency Coronavirus Appeal

Emergency Coronavirus Appeal

Helping those with EB when they need it most

£

People with EB are facing incredibly difficult challenges due to the Coronavirus (COVID-19) pandemic. Life for someone with EB can be hard without also having the fear of infection, care provision stopping, not being able to get food and vital medical supplies. At DEBRA we are committed to supporting the EB community today and into the future, but need your help through this unprecedented situation.

Why do people with EB need your help?

Epidermolysis Bullosa (EB) is a complex, potentially fatal skin condition which causes the skin to tear or blister at the slightest touch. Some people with EB are particularly vulnerable at this time, particularly those with more severe forms of the condition who may already have fibrosis of the airway tract and be experiencing compromised immunity.

The debilitating nature of EB also means that sufferers often experience significant financial hardship and will now need additional financial support. The number of available carers is diminishing, either through illness or self-isolation, meaning the health and wellbeing of those they care for could be placed in serious jeopardy.

How your donations are changing lives

“I am in self-isolation, in fact strict “shielding” and can’t leave my home because of my condition, EB. Without DEBRA’s emergency food package I would be without food. They helped to set me up with a local food service long term and arranged a food package immediately to stop me from going hungry before this service is in place. I cannot thank them enough” Scott, DEBRA member.

Things are likely to get worse before they get better. We urgently need to raise £60,000 to support DEBRA members.

We’ll help those through financial hardship with our support grant scheme and provide emotional support by helping to ensure care is in place with the dedicated Community Support Team working hard to provide in depth remote support.

Our income has reduced significantly due to the cancellation of most fundraising events and the closure of all of our charity shops, and based on what we have seen in the past few weeks, we predict that the urgent needs of the EB community will increase, including the number of requests for support grants to cover urgent and essential items such as food and equipment. We expect to need double the amount of support grant funding usually required to get through this pandemic.

We need your help to continue to provide this additional emergency care and life-changing support now and in the future, please donate what you can. Thank you.

“I had a phone call last week from a really lovely lady called Amelia who rang to make sure that I was ok, it was so nice talking to her and very nice to know that there’s this amazing support from DEBRA. Thank you” Belinda, EB member.

Please consider making a gift to DEBRA so we can continue to support members so that they are not facing the challenging times alone. If you are able to, a regular gift would help us to rebuild lost income and plan ahead as we continue to invest for a future free of EB.

Stay safe, stay home, save lives. We will beat this together.

Could your company match fund your donation? Barclays have just announced an employees’ matched donation scheme of £50 million.

Emergency Coronavirus Appeal

Emergency Coronavirus Appeal

Helping those with EB when they need it most

£