Join Team EB
We need YOU to join Team EB and join stars like Scott Brown and Emma Dodds.
We want you to get involved and take on a special challenge for DEBRA – the rest is up to you. You can run, swim, walk, roll, scoot, dance, kick, whatever you want.
Danceathons, sponsored silences, video game marathons, golf ball hits, penalty shots or saves, laps of the garden, runs around something, whatever you like!
Choose your challenge, sign up, recruit your sponsors and BE THE DIFFERENCE FOR EB.
That’s it – help us, but do it your own way.
Team EB needs you!
YOUR CHALLENGE
YOUR SPONSORS
YOUR WAY
Alternatively, you can contact us and we’ll help you setup your challenge.
What is EB?
Epidermolysis bullosa (EB) is incredibly painful genetic skin conditions that cause the skin to blister and tear easily. It is skin as fragile as a butterfly’s wing, which is why it is also commonly known as ‘butterfly skin’.
EB can be very visible and affect the whole body, but in the Simplex form (70% of all cases), it can be less visible and only certain areas of the body such as the feet.
EB always leads to excruciating pain and can have a devastating impact on life.
About DEBRA
DEBRA is a UK national medical research charity and patient support organisation for people living with all types of EB. DEBRA’s EB Community Support Team works with the EB community and healthcare professionals to provide support services for families and individuals affected by EB which aim to improve quality of life.
DEBRA also invests in medical research to secure effective drug treatments for all types of EB and this drive is to help fund trials of repurposed drugs which are showing promising signs.