EB healthcare services in Scotland
EB clinics run in Glasgow, Edinburgh, Dundee, and Aberdeen. EB nurses will attend these clinics, but you can also arrange to meet with them outside of these clinics by arranging a phone or virtual consultation, and when required, home visits.
Alongside the EB clinics, care for some patients is through their local dermatology team who can also link with the EB nurses as required.
To access the EB team, you will need to be referred by your hospital consultant, which is usually your dermatologist or paediatrician.
EB services and contact details
Susan Herron is often the first point of contact for patients who have EB related issues or concerns. She is based at the Glasgow Royal Infirmary.
If you have been diagnosed with EB and have an assigned consultant, Susan will be able to signpost you to the services you may need including paediatric and adult EB nursing staff, supporting letters for benefits and travel, and the community support team at DEBRA UK.
If you don’t have a confirmed diagnosis, then Susan can help guide you through the assessment process to ensure you get a primary care referral to your local dermatology team.
Contact information
Susan Herron – EB Business Support Assistant
Address: Glasgow Royal Infirmary, Department Of Dermatology, Walton Building, 84 Castle Street, Glasgow, G4 0SF
Email: susan.herron@ggc.scot.nhs.uk
Tel: 0141 201 6447
Working days: Tuesday, Wednesday, Thursday
Sharon Fisher and Kirsty Walker are the EB paediatric clinical nurse specialists for NHS Scotland. They provide support for all neonates, infants, and children aged 16 years and under in Scotland who are diagnosed with EB from birth onwards.
Home visits and hospital clinic appointments along with telephone advice and support are provided. Visits to nurseries and schools are also undertaken to help educate and support staff as needed and should children require surgical procedures then the nurses can help provide specialist advice to anaesthetic and surgical teams about how to safely handle the skin.
Contact information
Sharon Fisher – EB Paediatric Clinical Nurse Specialist NHS Scotland
Address: Royal Hospital for Children, Dermatology Department, Admin Block, 1345 Govan Road, Glasgow, G51 4TF
Email: sharon.fisher@ggc.scot.nhs.uk
Tel: 07930 854944
Working days: Monday, Wednesday, and Thursday
Kirsty Walker – Dermatology Nurse
Address: Royal Hospital for Children, Dermatology Department, Admin Block, 1345 Govan Road, Glasgow, G51 4TF
Email: kirsty.walker@ggc.scot.nhs.uk
Tel: 07815 029269
Working days: Tuesday
In Scotland there are no specific transition clinics and moving from paediatric to adult services is managed on an individual basis. Discussion around transition to adult services starts at around 15 years of age and involves the patient and their parents. There is no fixed time to move, and transition will take place when it is felt appropriate for the individual. In many cases there is no need for formal transition as the same dermatology consultants will be involved in seeing both children and adults with EB, so the clinics remain the same. The nursing input, however, will change.
The EB clinical nurse specialist for adults will typically aim to attend one or two paediatric clinic appointments pre transition to meet the young adult in advance of transition and taking on their care. In the same way, the EB clinical nurse for paediatrics will also aim to attend the patients first adult EB appointment to ensure a smooth handover and transition.
This position is currently vacant.
Contact information
Address: Glasgow Royal Infirmary, Dermatology Department, Walton Building, 84 Castle Street, Glasgow, G4 0SF
Tel: 07772 628831
Working days: Monday and Wednesday
Consultant led EB clinics take place in units across Scotland with some taking place monthly and others bi-annually depending on the number of patients require support. The clinics will usually see both children and adults with EB and are supported by the EB nursing team.
For more information, please see below:
- Glasgow – monthly clinic run by Dr. Catherine Jury alternating between adults and paediatrics.
- Edinburgh – clinics run three times a year and led by Professor Sara Brown.
- Aberdeen – clinics run twice a year and are led by Dr. Victoria Wray
- Dundee – one clinic per annum led by Dr. Ross Hearn
There is currently no designated EB NHS psychology support available in Scotland however EB patients in need of psychological support can be referred either by their GP, EB nurse, or lead consultant to local services.
Find out more about other mental health support and resources.