DEBRA UK launches new complete guide to membership
We are excited to announce the launch of our brand-new complete guide to DEBRA membership. The aim of this guide is to help all our EB members make the most of their membership, by providing an overview of all the support services and benefits we offer. The guide also includes guidance on accessing EB specialist healthcare, EB information to share with healthcare professionals, and more.
This project is another fantastic example of member involvement. We held two focus groups with DEBRA members to gain their invaluable insights – firstly at the start of this project, and again during the creation process, to ensure the guide meets their needs.
These members shared their ideas and suggestions for content that could be added to the guide or improved, so we could implement these changes as we made the final product.
Thank you so much to the members who took part in this project. We couldn’t have produced the guide without your input, which made sure the final result supports the EB community as best as possible.
We hope you will find this guide a helpful overview and reminder of all the different ways we can support you and the benefits you have access to.
If you’re living with EB and you aren’t already a DEBRA member, please have a read of the guide and see what could be available to you. It’s easy to sign up and it’s completely free. As you’ll see in the guide, there are loads of reasons to become a member!