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DEBRA Members’ Weekend 2026

Collage of people at the DEBRA Members' Weekend 2026 Collage of people at the DEBRA Members' Weekend 2026

Thank you so much to everyone who joined us for the DEBRA UK Members’ Weekend 2026! It was a fantastic weekend, filled with memorable moments and experiences at Drayton Manor Resort.

Members’ Weekend continues to be one of the most meaningful dates in our calendar – a chance to come together in a welcoming space, build friendships, and spend time with DEBRA’s EB Community Support Team as well as leading healthcare and research experts.

Some highlights of the day included…

  • Expert talks and workshops on EB research, care, and everyday living
  • Support sessions for individuals and families
  • Q&As and informal table talks, including with DEBRA’s CEO
  • Fun activities for all ages, from gaming to circus skills
  • Creative and wellbeing sessions to relax and reflect
  • Interactive entertainment, including games, challenges, and more

A huge thank you to everyone who got involved and helped make this such a wonderful event. Thank you to all the members who travelled to be there, everyone who helped organise the day’s activities, all our workshop and table talk leaders, and our amazing volunteers.

We would love to hear any feedback you have to help us plan for next year’s Members’ Weekend, so we know what we did well and what we can do better. Please fill in this form if you have any feedback, ideas or suggestions.

A collage of people at the DEBRA Members’ Weekend 2026. A collage of people at the DEBRA Members’ Weekend 2026.

A final thank you to our sponsors!

We would also like to say thank you to all our sponsors for supporting the DEBRA UK Members’ Weekend 2026. The generosity of our sponsors and corporate partners is essential for us to provide events like this for our members.

Thank you to Bullen Healthcare, Peninsula Group, Urgo Medical, Mölnlycke Health Care, Flen Health, TWi Biotechnology, Inc. and RHEACELL GmbH & Co. KG.

Their support was instrumental in removing financial barriers and ensuring families could benefit from guidance, community and meaningful shared experiences – without added stress. A huge thank for your support.

You can find more information on how your company can support DEBRA visiting our corporate partnerships page.