DEBRA publishes Impact Summer 2026
The Summer issue of Impact is here!
We’re excited to share with you the new edition of Impact, DEBRA UK’s supporter newsletter. Impact highlights the incredible difference you’re making to the lives of people living with epidermolysis bullosa (EB), also known as butterfly skin.
For this summer’s edition, DEBRA member Jennifer shares her story. Both Jennifer and her four-year-old son, William, have EB. Thanks to your generosity, DEBRA has been able to support Jennifer for many years, and has provided a range of life-changing help for William since his diagnosis, like helping him get a wheelchair so he can still move around when he’s struggling through pain.
You’ll also get to read about…
- The amazing result of our spring appeal, as so many of you generously responded, and what DEBRA President Graeme Souness CBE is planning for his next challenge in September (page 4).
- Gemma from DEBRA’s EB Community Support Team, and how she’s been so important in the lives of families like Jennifer’s (page 5).
- DEBRA Members’ Weekend, our biggest EB community event of the year (page 8).
- The much-needed respite and family memories being created at DEBRA’s holiday homes this summer (page 10).
And lots more, from incredible stories about what supporters have done to fundraise recently, to exciting EB research news.
Please enjoy reading this issue. Every story shows the impact your support is having. Share it with friends and family too, and help us keep raising awareness and building the support we’re providing for the EB community together.
Thank you for being there for people living with EB.