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Stay up to date with the latest news, research breakthroughs, and inspiring stories from the EB community. Discover how DEBRA is leading the fight against Epidermolysis Bullosa (EB).

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Representatives of The landmark hotel and DEBRA UK stand in front of a decorated Christmas tree, holding a large ceremonial check.

12th January 2026

The Landmark hotel raised £39k for DEBRA in 2025

Portrait of DEBRA UK Trustee Jim Irvine, wearing a pink checkered shirt and a blue pin poses against a light blue background.

30th December 2025

DEBRA former Chair of Trustees Jim Irvine recommended for MBE

The French flag, featuring vertical blue, white, and red stripes, flies on a flagpole against a partly cloudy sky.

18th December 2025

Calling people living with severe EB Simplex in France!

A young girl in a wetsuit gently interacts with a dolphin in clear water during daylight.

12th December 2025

How charity partnerships support children with EB: Kira’s story

Side-by-side portraits of Zoe Bailey (left) and Jas Jahaj (right), DEBRA UK trustees

25th November 2025

Two new Trustees join the DEBRA Board

A man in a suit speaks into a microphone while facing a person in a black dress and boots inside a boxing ring at an indoor event.

20th November 2025

DEBRA’s 20th Anniversary Fight Night raises record-breaking amount for the EB community

A woman holds printed charts, discussing research findings with a colleague at a desk; a screen and flipchart with graphs are visible in the background.

13th November 2025

EB Research News Summary: July – October 2025

Three people in business attire stand in a modern conference room, reminiscent of the Scottish Parliament, with a long table, screens, and ceiling lights visible in the background.

13th November 2025

DEBRA UK advocate for EB at Scottish Parliament Reception

12th November 2025

We are delighted to announce two new EB Voices ambassadors