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Stay up to date with the latest news, research breakthroughs, and inspiring stories from the EB community. Discover how DEBRA is leading the fight against Epidermolysis Bullosa (EB).

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Several people in lab coats and hairnets work with computers and scientific equipment in a bright, modern laboratory setting.

NIHR’s £37m investment in charities to support early career researchers

A woman stands indoors holding a sign that reads, "I’m a rare disease advocate because... everyone knows someone with a rare disease," at a stand for rare disease awareness.

DEBRA UK Research Team member attends the International Drug Repurposing conference in May 2026

Portrait of DEBRA UK Trustee Jim Irvine, wearing a pink checkered shirt and a blue pin poses against a light blue background.

Jim Irvine MBE appointed Honorary Life Patron of DEBRA

Four people stand together outdoors, smiling and talking, with greenery and hedges in the background.

DEBRA’s new 2027-2029 Strategic Plan

A red-brick hospital building with a columned entrance stands on a busy city street with cars, buses, and people outside.

DEBRA partners with Great Ormond Street Hospital Charity to offer research funding for children with EB

A trophy labelled "The Three Horseshoes DEBRA Charity Cup Winners 2026" sits in front of a poster promoting the Three Horseshoes charity weekend for DEBRA.

Three Horseshoes DEBRA charity weekend raises £35,000 in Witney

Two men in suits shake hands whilst holding a large HSBC UK cheque for £55,000 made out to DEBRA, dated 21 March 2024, with NWVA and DEBRA banners in the background.

DEBRA receives £55,000 donation from Nationwide Assistance Group

Two people stand behind a counter, holding flowers and a certificate, with large blue “25” balloons in the background, celebrating an anniversary or milestone.

Celebrating 25 years of volunteering in Saltcoats

EB Community Support Team Manager Jade with a DEBRA member at Members' Weekend 2026.

DEBRA Members’ Weekend 2026