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Members' Weekend and AGM 2020

Members' Weekend and AGM 2020

Join us at our annual Members’ Weekend and AGM 2020 on the 2nd - 3rd May at Wokfield Estate, Reading, Berkshire.

What to expect

Our Greatest Show Circus theme will acknowledge some of the demands that many Members juggle in life when living with EB.

Members have told us how useful and enjoyable it is to attend Members’ Weekend,  it connects them with other Members living with EB, helps people who may feel isolated and gives an opportunity to share and learn from one another as well as meet community support, healthcare and research leads and have fun. Watch the video at the bottom of this page to find out more.

  • Something for everyone – whatever your age or the type of EB that you live with 
  • Attend for one day or the whole weekend
  • Saturday - presentations, practical workshops, information stands, fun activities and plenty of food!
  • Saturday evening - drinks reception, dinner, disco, overnight accommodation and breakfast
  • Members’ AGM will also be held on Saturday
  • On Sunday you will be free to enjoy the many lovely places nearby, for example, Wellington Country Park, Windsor or Henley-on-Thames.

If you would like to be involved with the theme of the weekend for example by providing entertainment, sharing a story or suggesting topics for the workshops please get in touch. Let’s work together and tackle how we juggle the demands of life.

Who can attend?

To attend the event you must be a DEBRA Member. If you are not yet a Member but would like to come to the event, please click here to find out more and download a Membership application form. Alternatively, request a form to be posted to you by calling the Membership Team on 01344 771961.

Please note that any number of Members are welcome to attend the Members’ Day and AGM which is held during the day on Saturday (subject to venue capacity). However, a maximum number applies to booking the optional Saturday evening event, which includes dinner and overnight accommodation. For families wishing to apply for the evening event a family member is defined as a parent, guardian or sibling under the age of 18.

How to book 

Please complete the application pack below.  The presentations, AGM and activities on Saturday are free. A £20 contribution (children are free) is required to secure your booking for the evening meal and overnight accommodation (subject to eligibility criteria).

Extended Friday Night Grant Scheme

This is available, on a limited basis, to allow Members who wish to attend the Annual Members’ Weekend & AGM from the start time on Saturday morning but have a long distance to travel and who may require additional time for dressing changes.  See application pack below for further details. To find out more, click here.

If you have any questions, need documents posting or help with completing any of the forms, please contact the Membership Team on 01344 771961 or email

Completed forms should be returned to us by email or post by 17th January 2020.

MEMBERS' WEEKEND application pack

Extended friday night stay grant application pack

Watch the video below or click here to see what happened at Members’ Weekend 2019 and view the presentations.


See our other Member Events